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| Ben's Video EEG |
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| See more excellent photos here! |
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with POLR2A, a rare genetic change. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.
I bet he is glad that that is over with!
ReplyDeleteOh! Reminds me of a recent sleep study that my son had. Not a fun way to spend the night-- or whole day, in your case.
ReplyDeleteYou don't know how glad he was! His smile was big and his sounds were loud.
ReplyDeleteOh no - that does not look fun. I hope it goes OK and you get the results you need.
ReplyDeleteHope you are back home and resting by now. Poor guy (and Mom), that's a lot to deal with!
ReplyDeleteHope all is well! What a good boy, mine would be ripping those wires off.
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