I wish I had more time to write on eSpeciallyBen . Ben teaches us lessons on a regular basis: Smile often, give hugs, sit down and savor the moment, grab someone's hand to let them know you care and laugh with abandon–even if it annoys your brother. Ben will be 18 this summer. He attends high school in-person and enjoys seeing his classmates and teachers each day. In the photo above, it's 6 a.m. and he's can't wait to get on the bus. As for most people, the pandemic has been tough. Ben's in-person activities, camps and programs were canceled. He's happy to see grandma when we met on a Charlotte greenway or park. Ben seeks out social interactions and being quarantined away from friends and family was even more difficult because he didn't understand why. Ben's teacher sends me photos of him throughout the week. They just finished a rousing game of catch here. Thank you for following eSpeciallyBen. If you want to see what I'm working on now, find me
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.
I bet he is glad that that is over with!
ReplyDeleteOh! Reminds me of a recent sleep study that my son had. Not a fun way to spend the night-- or whole day, in your case.
ReplyDeleteYou don't know how glad he was! His smile was big and his sounds were loud.
ReplyDeleteOh no - that does not look fun. I hope it goes OK and you get the results you need.
ReplyDeleteHope you are back home and resting by now. Poor guy (and Mom), that's a lot to deal with!
ReplyDeleteHope all is well! What a good boy, mine would be ripping those wires off.
ReplyDelete