Never thought I would be relieved for Ben to have just a run-of-the-mill skin staph infection, no MRSA. Thank you for your prayers and well wishes. After taking Ben to the doctor a second time and being reassured that he was healing, I did go to Philadelphia to see my friend Carla. We had an incredible time catching up, eating, walking and just spending time with each other. I came back refreshed and ready for anything. The trip reminded me that getting away is important to my mental and physical well-being. Perhaps I should not wait 13 years again to visit Carla. If you are ever in the Philadelphia area, I highly recommend Longwood Gardens and Tyler Arboretum . They are probably some of the most beautiful places I have seen in awhile.
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.