Skip to main content

Walking In Water



Last summer, while on vacation at a Jellystone Campground, Ben started to let go of me in the pool. He wore a life vest in 2 1/2 feet of water and by the last day, he was pushing me away and standing in the water unassisted for short periods of time - a few seconds at the most.

This year, we joined an aquatic center with a special indoor therapeutic pool. I figured by the end of this summer, Ben would walk in the water while holding on to the rails.

Once again, the stinker proved me wrong.

We went to the aquatic center twice during Memorial Day weekend, just a week ago. Ben screamed in joy every minute of the 5 hours total we spent there. He sat in about one foot of water and watched everyone play. He moved around a bit by crawling and scooting.

This Sunday, he insisted on leading Kim, the community staff person, to the 3ft area. (big kudos to Kim, because the water was icy). There were many boys his age swimming around and goofing off. They definitely were the impetus for him wanting to go over to the deeper water.

Kim caught my eye, and said I needed to come over there.

Ben was standing in the middle of the pool, on his own, and then he walked the 5-6 feet to the edge. He continued to do this for the next hour or so with only two breaks for snacks. He did not have physical help from anyone, and he was not even in the therapeutic pool with the rails.

His smile was huge. I can only imagine the independence he felt.

So that's three days into swimming. Summer has not even started. What will this boy do next?


No photos or video to offer as proof because I was not expecting Ben to surprise us all on the 3rd visit to the pool. You will have to take my word for it - grandparents and Kim will vouch as well.




Comments

Popular posts from this blog

Parenting an Adult Child with Disabilities

  "Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence

He Ain't Heavy, He's My Brother

After my post, Brotherly Love , I received an email from a reader who reminded me of this song. I knew the song, but had never really thought about the words and the meaning behind them. I looked it up and thought others might see the lyrics in a new light.   He Ain't Heavy, He's My Brother The road is long With many a winding turn That leads us to who knows where Who knows when But I'm strong Strong enough to carry him He ain't heavy, he's my brother. So on we go His welfare is of my concern No burden is he to bear We'll get there For I know He would not encumber me If I'm laden at all I'm laden with sadness That everyone's heart Isn't filled with the gladness Of love for one another. It's a long, long road From which there is no return While we're on the way to there Why not share And the load Doesn't weigh me down at all He ain't heavy, he's my brother. He's my brother He ain't h

Kids Who Volunteer

On Saturday, Kidz That Care , a nonprofit organization in Charlotte, visited Ben's Easterseals UCP group home to "Pack the Pantry" with groceries and beautify the front porch with flowers. Ben joined the group outside and watched them plant poinsettias, sweep leaves and wipe down tables.  I wasn't sure how engaged Ben was in the activity but when I tried to take him for a walk, he made it clear he wanted to stay and observe. He hugged the one adult with the group (not the photo above).  When the group was leaving, Kidz That Care asked to take a photo with Ben. I noticed how Liam, one of the teen volunteers, kneeled next to Ben rather than stand behind him. Usually people not comfortable around Ben are hesitant to get close. I was impressed with Liam's willingness to bend down and be at his level. Then Ben leaned in for a hug and held on to Liam for several minutes. Ben's hands were tight around Liam's neck and he kept his head on Liam's shoulder. It w