Logan has had these strange bumps on the side of his face, just below the ear lobe. They felt like pebbles under the surface of his skin. They seemed to develop after he fell a few years ago. Because of the pain they caused Logan whenever we touch that area, we finally took him to a plastic surgeon for a consultation. We learned that they were most likely not scar tissue from the fall. It was in fact something else, fairly common, but needed to be removed and sent to pathology. The doctor assured us that it would be benign. At the appointment, Logan asked how they would remove the bumps. The doctor went into a fairly detailed explanation that included the words knife and cutting. Logan freaked out. And Logan does freak-out really well. I quickly gave the doctor the evil eye and told Logan they would suck it out of his ear. He stopped crying immediately, I think he was trying to imagine how that would work. Then the doctor gave me the evil eye. I was later admonished for my white
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.