Ben's PT sent this email to me. I forwarded it to our family because they like to see updates on Ben's progress. The simple forward started a chain reaction of positive energy, attitudes and reignited passions. Who knew a few words and clicks on a keyboard would be able to forward kindness and appreciation? Vanessa, Ben had an AWESOME physical therapy session today! I have a high-school student shadowing me on Tuesday and Thursday afternoons. I think having her in front of Ben (because I am so often behind him offering cues/facilitation for proper mechanics/strengthening) added additional motivation to excel! We did several sets of sit-to/from-stand without my assist during the transition (but assist for balance once in stand) on command 100% of the time. We did 10 reps of stand to/from squat to retrieve a toy from the floor with minimal assist to grab toy (most times he either drops it, flings it, or sticks it in his mouth)! We had several core strengthening act
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.