Sean made fun of Ben's hair one morning. He said it was sticking up and looking silly. I told him not to make fun of his brother. Minutes later, I walked past the bathroom and saw Sean spritzing Ben's hair with water and brushing it. The photo was hard to get, but I thought a visual may be needed.
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.