I received this letter a few weeks after Ben attended Rainbow Express at Matthews United Methodist Church: First off, thank you so much for sharing your wonderful son with me this week. Ben really fascinated me as I learned more about him each day. I loved seeing his smile and laugh when he got excited, and although it was a wee bit painful, I laughed so hard every time I turned around and saw him innocently gnawing on my hair! Everywhere we walked in the hallways, someone stopped us wanting to meet Ben. It might have been because of his awesome trike or adorable red hair, but once people looked him in the eyes they fell in love with him and couldn't help but tell me how cute he is. I was surprised how well Ben was able to communicate his desires with me. I feel as though I've learned so much, not only about Ben, but about myself. Having Ben as my camper was a massive blessing. Give Ben a hug for me! Jaclyn Reading this letter made my day!
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.