Skip to main content

Surviving Summer

This summer has taken some getting used to - I think I may have mentioned it here a time or two. In an effort  to create some sort of a schedule, we started renting Red Box Family Movies every day. Tonight the boys are watching Free Willy while eating popcorn. Last night it was Beverly Hills Chihuahuas. It has been a relaxing way to end the day and spend time with each other.

Another mom blogger recently wrote about how summer is a stressful time for parents with children with special needs. She mentioned how most other families lavish the thought of days filled with no schedules. For parents with children with special needs, it can be a challenging time.

We are fortunate to have a therapeutic recreation division within our county parks and recreation department. They coordinate an eight week camp for children with special needs. The schedule includes weekly swim sessions, field trips, music therapy and gymnastics time. The ratio for the camps with smaller children is almost 2:1. The camp director is educated for this special population and understands the value of changing activities often while providing a consistent schedule.

This summer, Ben is attending 6 weeks at this camp. He has made new friends and been reacquainted with old ones from past years. Ben's private therapists meet him at the recreation center for their sessions. And when I pick Ben up at 3:30pm, he is rarely ready to go. Luckily, his brothers get to stay and play for awhile on the indoor jungle gym.

Sounds delightful on paper, but the reality is we are in a mad dash in the mornings to get out on time with lunches and bags packed. The right equipment and gear needs to be ready to go and then we have to be somewhat on time because of field trips or therapist appointments. On some days, it feels like driving to and from camp is all I do.

Next year, I will be better prepared mentally, physically and emotionally, and plan some downtime with movie nights and popcorn. And is it "playing hooky" when you miss camp a time or two?


Popular posts from this blog

Parenting an Adult Child with Disabilities

  "Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence

Impromptu Pet Therapy

  Ben met Doodle today. One of the staff at his day program brought him in. Ben loves dogs and these photos made my day. 

ABC's of ABA

A few weeks ago I attended a workshop presented by a behavior therapist. As it turned out, I went to a conference on the same topic over a year ago. I will describe what I have taken away from these methods in my own words - but please take a look at the links I have provided below. After I learned about this, life with children made a lot more sense to me. Not that this is earth shattering material, but it helped me to better understand the hows, whats and whys of behavior in children, and occasionally husbands. I am in no way an expert in this - just a parent who wants to share a behavior strategy that has worked in our home. I hope to inspire others to explore it further.  Any errors in information comes from me and cannot be blamed on the presenters. Also, you may have seen ABA - Applied Behavior Analysis - connected most often with Autism - please do not let this deter you if your child is not autistic. I use these methods with all my children, none of which are labeled au