Skip to main content

Surviving Summer

This summer has taken some getting used to - I think I may have mentioned it here a time or two. In an effort  to create some sort of a schedule, we started renting Red Box Family Movies every day. Tonight the boys are watching Free Willy while eating popcorn. Last night it was Beverly Hills Chihuahuas. It has been a relaxing way to end the day and spend time with each other.

Another mom blogger recently wrote about how summer is a stressful time for parents with children with special needs. She mentioned how most other families lavish the thought of days filled with no schedules. For parents with children with special needs, it can be a challenging time.

We are fortunate to have a therapeutic recreation division within our county parks and recreation department. They coordinate an eight week camp for children with special needs. The schedule includes weekly swim sessions, field trips, music therapy and gymnastics time. The ratio for the camps with smaller children is almost 2:1. The camp director is educated for this special population and understands the value of changing activities often while providing a consistent schedule.

This summer, Ben is attending 6 weeks at this camp. He has made new friends and been reacquainted with old ones from past years. Ben's private therapists meet him at the recreation center for their sessions. And when I pick Ben up at 3:30pm, he is rarely ready to go. Luckily, his brothers get to stay and play for awhile on the indoor jungle gym.

Sounds delightful on paper, but the reality is we are in a mad dash in the mornings to get out on time with lunches and bags packed. The right equipment and gear needs to be ready to go and then we have to be somewhat on time because of field trips or therapist appointments. On some days, it feels like driving to and from camp is all I do.

Next year, I will be better prepared mentally, physically and emotionally, and plan some downtime with movie nights and popcorn. And is it "playing hooky" when you miss camp a time or two?


Popular posts from this blog

Impromptu Pet Therapy

  Ben met Doodle today. One of the staff at his day program brought him in. Ben loves dogs and these photos made my day. 

Parenting an Adult Child with Disabilities

  "Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence

Parenting an Adult Child with Disabilities: Talking About the Future

Ben in the middle with Dad (left), Carla Payne with Aging Care Matters and Mom This is the first of several posts about parenting an adult child with a disability. Ben will be 19 this summer; I am learning along the way. As always, I hope to pass on resources and wisdom. Discuss the future.  If your adult child is able to participate in planning for their future, ask them how they envision it. Let them draw a picture. Ask them to tell you a story. Maybe they can sign a few words that mean a lot to them. Find a way to get them involved. How do they see themselves living? By themselves, in a group home, with another family or with a sibling? Where do they want to live? In another city, in an apartment, in a house? How far away do they want to live from family? What level of independence can they handle? Do they want someone to check in on them? Do they want to find a job? Do they need a job coach or supportive employment? Who will help them with their finances? Is there someone they tru