We've made the decision to get real beds for all the boys. All three are in toddler type beds now. Sean's bed is pictured here, and it was the crib that all three boys slept in from birth. It brings tears to my eyes to move on, but it means they are growing and becoming independent. Incidently, this picture came about because Ben climbed up and then I asked the other two to jump in with him for a photo opp. And as luck would have it, we found out that day that a very close family member is having a baby so we know the crib will stay in the family. I can at least visit it.
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.