In January, Ben had a video EEG at the hospital. In a nutshell, Ben was hooked up to 20 wires for 24 hours in a hospital room with little to no nursing assistance. So when we had the "opportunity" to get more information about Ben's seizures, I figured we would try the Ambulatory EEG . New experiences are good, right? Plus, torture at home has got to be better than torture in the hospital. All 20 electrodes took about one hour to apply. If you have not done an Ambulatory EEG , I hope this will help. Here are photos of the process and some things we did to make the experience tolerable for all of us. 1. Bring help to the doctor's office. Gluing the wires to Ben's head was difficult again - he knew what he was fighting for this time! I also needed the help for the car ride home - Ben could have done a lot of damage to the wires while I drove home. Ben was held down by three of us. 2. Keep your regular routine. Once home, we planned activities f
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.