I started this post a thousand times in my head and it was always called, Acceptance . I was cleaning up a pile of papers and came across a note with the same word written on it - a reminder to myself to write a post about this topic. Then I was reading an emotionally laden fiction book about family and it talked about the stages of grief, but acceptance was introduced to me for the first time as reconciliation . I thought about writing about the people around me who need to reconcile their thoughts and feelings about Ben - everyone from close family members to strangers we see on the street. Adding to the stress of having a son like Ben, is dealing with everyone else. But that's not fair - everyone is at their own place, on their own journey and try as I might judge other's level of acceptance, I am not in the position to do so. After many rewrites, I decided to talk about my own journey through acceptance and reconciliation - whichever word feels more comfortable. In thi
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.