When I worked at a local university in the dean's office, I was known for my organizational skills throughout the campus. If someone wanted something completed, they could come to me and I would be able to assemble an event, program, service with great organization, speed and accuracy. Who knew years later I would be putting those same skills to use for my son Ben? Over the last six years, we have met and talked with so many doctors, therapists, teachers, parents, insurance companies, agencies, organizations and respite workers that I could not keep them straight without the use of a fairly good organizational system. Below I outline the system that has worked well for me. Hopefully you may take some ideas from it and develop one that works for you. Filing Crate Purchase a crate that is designated solely for your child's information. A portable crate may come in handy if you have to take it with you to a special meeting. Make files for anything that you will receive
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.