In January, Ben had a video EEG at the hospital. In a nutshell, Ben was hooked up to 20 wires for 24 hours in a hospital room with little to no nursing assistance. So when we had the "opportunity" to get more information about Ben's seizures, I figured we would try the Ambulatory EEG. New experiences are good, right? Plus, torture at home has got to be better than torture in the hospital.
|All 20 electrodes took about one hour to apply.
1. Bring help to the doctor's office. Gluing the wires to Ben's head was difficult again - he knew what he was fighting for this time! I also needed the help for the car ride home - Ben could have done a lot of damage to the wires while I drove home.
|Ben was held down by three of us.
2. Keep your regular routine. Once home, we planned activities for Ben to do so the information on the EEG may be more indicative of Ben's lifestyle. We took him to the YMCA in his walker, then to Smelly Cat for a milkshake and then home for relaxing. The activity also helped get his mind off of tearing those wires off his head.
|Ben had his usual at Smelly Cat, the local coffeehouse.
I preferred the EEG at home. It was done on the weekend, so any sleep lost could be made up the next day without the mad rush of school and regular routine weighing down on me. And Ben did have several "events" - he fell forward a dozen or more times and his eyes fluttered a few times too. So hopefully, he gave the doctor the information she needs to offer options about Ben's care. We meet with the neurologist in May and will get the full report then.