Skip to main content

Rainbow Express

I received this letter a few weeks after Ben attended Rainbow Express at Matthews United Methodist Church:

First off, thank you so much for sharing your wonderful son with me this week. Ben really fascinated me as I learned more about him each day. I loved seeing his smile and laugh when he got excited, and although it was a wee bit painful, I laughed so hard every time I turned around and saw him innocently gnawing on my hair!

Everywhere we walked in the hallways, someone stopped us wanting to meet Ben. It might have been because of his awesome trike or adorable red hair, but once people looked him in the eyes they fell in love with him and couldn't help but tell me how cute he is.

I was surprised how well Ben was able to communicate his desires with me. I feel as though I've learned so much, not only about Ben, but about myself. Having Ben as my camper was a massive blessing. Give Ben a hug for me!


Reading this letter made my day!


  1. Where is your "LIKE" button? :-) I definitely like this post!

  2. I LOVED this one! eSpecially Ben is on Facebook and you can like it and share it from there too. Thanks for reading.

  3. Thats lovely, there are some beautiful people in this world. Both Ben and that counselor are obviously 2 of them.

  4. Truly a beautiful and touching story to read!
    What a lovely camp experience for Ben's camp helper, Jaclyn, and for Ben.

    Thank you for sharing the very heartfelt letter that you received with us.

    P.S. Is curious to know what Ben loved doing at camp?

  5. Love it!!!! I would love to get a letter like that. I hope I can meet your little Ben one day. He sounds like such a fun, interesting little boy, not to mention, a total cutie pie! :) -Kim


Post a Comment

Thank you for reading my post. I appreciate you taking the time to comment. If you wish to contact me directly, please let me know and I will email you.

Popular posts from this blog

Catching up with Ben

  I wish I had more time to write on eSpeciallyBen . Ben teaches us lessons on a regular basis: Smile often, give hugs, sit down and savor the moment, grab someone's hand to let them know you care and laugh with abandon–even if it annoys your brother. Ben will be 18 this summer. He attends high school in-person and enjoys seeing his classmates and teachers each day. In the photo above, it's 6 a.m. and he's can't wait to get on the bus. As for most people, the pandemic has been tough. Ben's in-person activities, camps and programs were canceled. He's happy to see grandma when we met on a Charlotte greenway or park. Ben seeks out social interactions and being quarantined away from friends and family was even more difficult because he didn't understand why. Ben's teacher sends me photos of him throughout the week. They just finished a rousing game of catch here.  Thank you for following eSpeciallyBen. If you want to see what I'm working on now, find me

A Lesson on Supplemental Security Income

In October, I received a letter from Social Security Administration saying that Ben no longer qualified for SSI AND we owed a very large over payment for two years of SSI that Ben did receive. The letter showed that we owned two of the same car. I knew this was wrong and immediately wrote a letter. I thought it was a computer glitch. Over the past five months, I have met with Social Security, spoke with several people over the phone and wrote countless letters providing documentation to show the cars we actually owned and filed appeals for the decision to revoke Ben's SSI during the two year period they think we owned these two cars. Tomorrow I have another meeting. I am hoping we can get this straightened out. This situation has caused a lot of stress for us and has taken a tremendous amount of our time trying to unravel the problem. I have not written a post in almost a month, partially because my brain power has been consumed with this issue and the bathroom saga (qualifies

Parenting an Adult Child with Disabilities: Talking About the Future

Ben in the middle with Dad (left), Carla Payne with Aging Care Matters and Mom This is the first of several posts about parenting an adult child with a disability. Ben will be 19 this summer; I am learning along the way. As always, I hope to pass on resources and wisdom. Discuss the future.  If your adult child is able to participate in planning for their future, ask them how they envision it. Let them draw a picture. Ask them to tell you a story. Maybe they can sign a few words that mean a lot to them. Find a way to get them involved. How do they see themselves living? By themselves, in a group home, with another family or with a sibling? Where do they want to live? In another city, in an apartment, in a house? How far away do they want to live from family? What level of independence can they handle? Do they want someone to check in on them? Do they want to find a job? Do they need a job coach or supportive employment? Who will help them with their finances? Is there someone they tru