Skip to main content

eSpecially Parents July Edition: Elisa's Story

Loving an Only Child

Choosing to love an only child is the most difficult choice I have ever made. Years ago, I imagined myself as the mother of four boys. I have always thought of myself as a “boy mom,” the only girl in a wild house filled with male voices. We were on our way to building that “house” when Samson came. Then, his unique challenges began to fill our thoughts and alter our direction.

One day we were 40 and I had let go of my original plan. Genetics forced us to consider the certainty of other biological children having the same neurological challenges as Samson. The foster system was my original idea – open our hearts to other children and wait until God chose the one we could keep. The possibilities of it all seemed dreamy to me at first. Reality arrived soon, however, when we learned that single children were often adopted by family, and that most opportunities to foster would likely be to siblings. Combined with Samson’s needs, adopting siblings seemed much more than we could manage. I am starry-eyed and dreamy, but I can manage to glimpse enough reality to clear my vision in significant moments.

Last year, through our church, we became a host family to a young man who studied at a seminary. I went into the program with a wistful hope for a bond of brotherhood between him and Samson. Brent went north at the end of May for an internship. He has a few times made the 3-hour drive to spend weekends splashing in the backyard pool with his “brother,” and I watch Samson’s joy overflow.

Today there are three of us. Every day I struggle to “let go and let God” provide what our son will need when he is alone. I wish for the calm of believing someone will surely care for him with the same dignity we strive for everyday. The quiet in our house feels lonely sometimes. But at the end of an ordinary day, I remind myself that all is well with the little family we have made.

If you want to read more from other parents, go here.

Comments

Popular posts from this blog

How I Make Being a Mom and Volunteer Work at this Group Home

  In September, Ben celebrated three years living in a group home in Charlotte, North Carolina, with five other men. Ben lives 20 minutes from our house, and we see him several times a week for doctor's appointments, to drop off supplies, for group home events and sometimes because I just miss him. Ben occassionally sleeps over, and he often spends a weekend day hanging out on his favorite couch, watching videos at our house. This Easterseals PORT Health home is Ben's second placement. The first placement through another agency didn't work out, and he left after six months . We were wary of trying a new place, but it's worked out well. My husband, Ryan, and I have developed a partnership with ESPH. Over time, we've built mutual respect and trust with the residents and staff.  Here's what's worked for us: 1. Get involved with the group home. Ben lives with five other men in a six-bedroom house in Charlotte. On move-in day, Steven, one of the residents, made ...

Gadgets & Gizmos - Part 6: Landeez Chair

We spent last week at the beach near Atlantic Beach in North Carolina. At Fort Macon Park , they have a special chair for people like Ben who may need extra help moving in the sand and water. The chair is made by Landeez . We were amazed by this chair. It did travel over the sand and in small amounts of water with ease. We bought an inexpensive strap to go around Ben's waist so he would not fall out.  I thought that Ben could go farther in the water sitting in the chair, but it does eventually float...away if in too deep of water. Ben got tired of sitting in it and wiggled his way under the strap. For the most part, it is a great invention and it made it easier for us to keep Ben safe on the beach. If he had been interested in a long walk on the beach, this would have worked great for him.

Parenting an Adult Child with Disabilities

  "Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence How I Make Being a Mom and Volunteer Work at this Group Home