Skip to main content

It's Not a Toothache


We are at the hospital for Ben's Video EEG. Ben had 20 electrodes glued to his head yesterday around noon. The gauze wrap is supposed to keep him from pulling at the wires. I am supposed to keep him from pulling at the gauze. They ran out of gauze last night after Ben pulled it off for the third time.

We cannot leave the room for 24 hours.

It is 6:30am and we have a few more hours to go. Ben's 4th gauze wrap is off and staying off. We've both had just a few hours sleep.

More about the procedure in the next few days.

(And if you are wondering, yes, that is Ben's mad face.)

Comments

  1. Ugh. Forgot to say that you can sometimes talk them into taking it of from around his chin...they just pull it up and place it on top of his head. Helps the kiddos not be so aware or aggravated by it. Sorry.

    ReplyDelete
  2. Oh look, if that were a a toothache he wouldn't have those bandages on his head.

    ReplyDelete
  3. Useful info. Fortunate me I discovered your web site by chance, and I am surprised why this accident did not took place in advance! I bookmarked it.
    Invisalign Toronto

    ReplyDelete

Post a Comment

Thank you for reading my post. I appreciate you taking the time to comment. If you wish to contact me directly, please let me know and I will email you.

Popular posts from this blog

Parenting an Adult Child with Disabilities

  "Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence

He Ain't Heavy, He's My Brother

After my post, Brotherly Love , I received an email from a reader who reminded me of this song. I knew the song, but had never really thought about the words and the meaning behind them. I looked it up and thought others might see the lyrics in a new light.   He Ain't Heavy, He's My Brother The road is long With many a winding turn That leads us to who knows where Who knows when But I'm strong Strong enough to carry him He ain't heavy, he's my brother. So on we go His welfare is of my concern No burden is he to bear We'll get there For I know He would not encumber me If I'm laden at all I'm laden with sadness That everyone's heart Isn't filled with the gladness Of love for one another. It's a long, long road From which there is no return While we're on the way to there Why not share And the load Doesn't weigh me down at all He ain't heavy, he's my brother. He's my brother He ain't h

Kids Who Volunteer

On Saturday, Kidz That Care , a nonprofit organization in Charlotte, visited Ben's Easterseals UCP group home to "Pack the Pantry" with groceries and beautify the front porch with flowers. Ben joined the group outside and watched them plant poinsettias, sweep leaves and wipe down tables.  I wasn't sure how engaged Ben was in the activity but when I tried to take him for a walk, he made it clear he wanted to stay and observe. He hugged the one adult with the group (not the photo above).  When the group was leaving, Kidz That Care asked to take a photo with Ben. I noticed how Liam, one of the teen volunteers, kneeled next to Ben rather than stand behind him. Usually people not comfortable around Ben are hesitant to get close. I was impressed with Liam's willingness to bend down and be at his level. Then Ben leaned in for a hug and held on to Liam for several minutes. Ben's hands were tight around Liam's neck and he kept his head on Liam's shoulder. It w