- Write it down and you will feel obligated to carry it through.
- Make a pact with a friend or relative and you have accountability.
- Make it public and then you really have to follow through with it.
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.