The Countdown Begins: 50 Days

50 Days Until Amazing Race

As many of you have read, Ryan and I will be contestants in our local version of Amazing Race on Saturday, March 12, 2011. The county parks and recreation department is organizing this event to raise money for the scholarship fund for Therapeutic Recreation camps offered during the summer for people with special needs. To catch up read here.

We still need your support!

1. Donate $10 and receive a Ben Bookmark. Proceeds will be sent to the scholarship fund. Send me a private email at vanessainfanzon@gmail.com.

2. We need a team name. We have two suggestions for team names: eSpecially Ben and Bentastic. We want a few more so everyone can vote for their favorite. Get your creative juices flowing and send us your suggestions in the comment section below. There will be a prize for the person whose team name is chosen.

Prize categories for Amazing Race were announced this week: Team Spirit, Most Funds Raised and Grand Prize - a Charter Dive or Charter Fishing tour off Topsail Island. Help us win!

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"Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence

He Ain't Heavy, He's My Brother

After my post, Brotherly Love , I received an email from a reader who reminded me of this song. I knew the song, but had never really thought about the words and the meaning behind them. I looked it up and thought others might see the lyrics in a new light. He Ain't Heavy, He's My Brother The road is long With many a winding turn That leads us to who knows where Who knows when But I'm strong Strong enough to carry him He ain't heavy, he's my brother. So on we go His welfare is of my concern No burden is he to bear We'll get there For I know He would not encumber me If I'm laden at all I'm laden with sadness That everyone's heart Isn't filled with the gladness Of love for one another. It's a long, long road From which there is no return While we're on the way to there Why not share And the load Doesn't weigh me down at all He ain't heavy, he's my brother. He's my brother He ain't h

Kids Who Volunteer

On Saturday, Kidz That Care , a nonprofit organization in Charlotte, visited Ben's Easterseals UCP group home to "Pack the Pantry" with groceries and beautify the front porch with flowers. Ben joined the group outside and watched them plant poinsettias, sweep leaves and wipe down tables. I wasn't sure how engaged Ben was in the activity but when I tried to take him for a walk, he made it clear he wanted to stay and observe. He hugged the one adult with the group (not the photo above). When the group was leaving, Kidz That Care asked to take a photo with Ben. I noticed how Liam, one of the teen volunteers, kneeled next to Ben rather than stand behind him. Usually people not comfortable around Ben are hesitant to get close. I was impressed with Liam's willingness to bend down and be at his level. Then Ben leaned in for a hug and held on to Liam for several minutes. Ben's hands were tight around Liam's neck and he kept his head on Liam's shoulder. It w

eSpecially Ben

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