In September, Ben celebrated three years living in a group home in Charlotte, North Carolina, with five other men. Ben lives 20 minutes from our house, and we see him several times a week for doctor's appointments, to drop off supplies, for group home events and sometimes because I just miss him. Ben occassionally sleeps over, and he often spends a weekend day hanging out on his favorite couch, watching videos at our house. This Easterseals PORT Health home is Ben's second placement. The first placement through another agency didn't work out, and he left after six months . We were wary of trying a new place, but it's worked out well. My husband, Ryan, and I have developed a partnership with ESPH. Over time, we've built mutual respect and trust with the residents and staff. Here's what's worked for us: 1. Get involved with the group home. Ben lives with five other men in a six-bedroom house in Charlotte. On move-in day, Steven, one of the residents, made ...
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with POLR2A, a rare genetic change. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.

I bet he is glad that that is over with!
ReplyDeleteOh! Reminds me of a recent sleep study that my son had. Not a fun way to spend the night-- or whole day, in your case.
ReplyDeleteYou don't know how glad he was! His smile was big and his sounds were loud.
ReplyDeleteOh no - that does not look fun. I hope it goes OK and you get the results you need.
ReplyDeleteHope you are back home and resting by now. Poor guy (and Mom), that's a lot to deal with!
ReplyDeleteHope all is well! What a good boy, mine would be ripping those wires off.
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