My sister, Olivia, started a pen pal program in honor of Ben: Ben Pals. Read more about it in this Easterseals PORT Health newsletter: Time-Honored Letter Writing Ben with Olivia
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with POLR2A, a rare genetic change. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.