Perhaps I have mentioned before that Ben loves Bob the Builder. This photo captures Ben watching his new "Bob" video from Santa on Christmas Day while we opened presents, something he does not particularly enjoy. It was our way to involve Ben in something he likes and be with us at the same time. Rather than feel guilty and sad about Ben not participating in Christmas morning activities in the traditional way, we tried this innovative approach - and it worked well for the whole family.
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.
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