Skip to main content

Letters to God


For what seemed like eternity, our neighbor's RV was parked outside our bedroom window. When I looked out, the dad from the Walton's and a bald boy with a knit hat stared back at me.

The RV is wrapped to advertise the movie, Letters to God, which comes out on April 9. My neighbor promotes films and thought this might be a good way to get the word out. We certainly got the message.

Last week, my neighbor asked if I wanted to see a sneak preview of the movie. Curiosity and a night out ensured my acceptance.

The film is based on a true story - and to the credit of the writer, producer and director - they deliver a message of hope and prayer. In addition, they share resources and information about cancer organizations available to help families and individuals affected by this disease. A number of national and international organizations support the movie.

The movie is about a boy, Tyler, who has brain cancer. As a coping mechanism, he writes letters to God explaining what is going on around him, to him and to the other people in his life. This story demonstrates how this boy and these letters change the course of many people's lives.

Some of the movie is hokey; okay a lot of the movie is hokey. At times, it felt like an Afterschool Special or a Lifetime Original. The actor playing Tyler is excellent, and that helps to overlook some of the other bad acting. There are some scenes done well with good music. But there are others that made me cringe in my seat.

At the serious parts, it did make me think about my relationships with my typical children and how they are affected by Ben's special needs and the attention he gets from us. I thought about some of the questions I have posed in other postings about the gifts Ben has given us as well as the roller coaster of emotions we feel on a regular basis.

Overall, you need to bring tissues, an open mind and heart and take away a message of hope and love.

Comments

Popular posts from this blog

Impromptu Pet Therapy

  Ben met Doodle today. One of the staff at his day program brought him in. Ben loves dogs and these photos made my day. 

Parenting an Adult Child with Disabilities: Talking About the Future

Ben in the middle with Dad (left), Carla Payne with Aging Care Matters and Mom This is the first of several posts about parenting an adult child with a disability. Ben will be 19 this summer; I am learning along the way. As always, I hope to pass on resources and wisdom. Discuss the future.  If your adult child is able to participate in planning for their future, ask them how they envision it. Let them draw a picture. Ask them to tell you a story. Maybe they can sign a few words that mean a lot to them. Find a way to get them involved. How do they see themselves living? By themselves, in a group home, with another family or with a sibling? Where do they want to live? In another city, in an apartment, in a house? How far away do they want to live from family? What level of independence can they handle? Do they want someone to check in on them? Do they want to find a job? Do they need a job coach or supportive employment? Who will help them with their finances? Is there someone they tru

Catching up with Ben

  I wish I had more time to write on eSpeciallyBen . Ben teaches us lessons on a regular basis: Smile often, give hugs, sit down and savor the moment, grab someone's hand to let them know you care and laugh with abandon–even if it annoys your brother. Ben will be 18 this summer. He attends high school in-person and enjoys seeing his classmates and teachers each day. In the photo above, it's 6 a.m. and he can't wait to get on the bus. As for most people, the pandemic has been tough. Ben's in-person activities, camps and programs were canceled. He's happy to see grandma when we met on a Charlotte greenway or park. Ben seeks out social interactions and being quarantined away from friends and family was even more difficult because he didn't understand why. Ben's teacher sends me photos of him throughout the week. They just finished a rousing game of catch here.  Thank you for following eSpeciallyBen. If you want to see what I'm working on now, find me here .