Ben's paperwork to apply for a toileting system has been held up since March. Unfortunately, I did not know it, and I was under the impression that the 3-6 month wait for approval was well underway. When I posed the question to the vendor about when we might expect the toilet, I was told that the paperwork needed was never completed by the therapy company.
Once I got involved and sent emails out to light a fire under a few people, the paperwork was completed and sent in. Later, when I asked what the heck happened, it seems that there was a disagreement between the vendor and therapy company about who should fill out the paperwork. REALLY? Is that what this was about? AND YES I AM YELLING.
Please take a step back and look at what this is all about: a little boy who needs a toilet so he can be safe and independent. After that, nothing else really matters - who completes the paperwork, who should have done it as a courtesy or any other unnecessary bickering is just not important. There really is no place for that when working with children.
My lesson learned: Never assume something has been done by an outside party. Follow-up with everything and everyone and get it all in writing until the process is complete.
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| Although advocating can sometimes seem like a never-ending job, you are fighting for the rights of your child and there is a light at the end of the tunnel. If you are lucky, there are a few lanterns along the way held by people who will aid you in your journey. |
Once I got involved and sent emails out to light a fire under a few people, the paperwork was completed and sent in. Later, when I asked what the heck happened, it seems that there was a disagreement between the vendor and therapy company about who should fill out the paperwork. REALLY? Is that what this was about? AND YES I AM YELLING.
Please take a step back and look at what this is all about: a little boy who needs a toilet so he can be safe and independent. After that, nothing else really matters - who completes the paperwork, who should have done it as a courtesy or any other unnecessary bickering is just not important. There really is no place for that when working with children.
My lesson learned: Never assume something has been done by an outside party. Follow-up with everything and everyone and get it all in writing until the process is complete.
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