In September, Ben celebrated three years living in a group home in Charlotte, North Carolina, with five other men. Ben lives 20 minutes from our house, and we see him several times a week for doctor's appointments, to drop off supplies, for group home events and sometimes because I just miss him. Ben occassionally sleeps over, and he often spends a weekend day hanging out on his favorite couch, watching videos at our house. This Easterseals PORT Health home is Ben's second placement. The first placement through another agency didn't work out, and he left after six months . We were wary of trying a new place, but it's worked out well. My husband, Ryan, and I have developed a partnership with ESPH. Over time, we've built mutual respect and trust with the residents and staff. Here's what's worked for us: 1. Get involved with the group home. Ben lives with five other men in a six-bedroom house in Charlotte. On move-in day, Steven, one of the residents, made ...
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with POLR2A, a rare genetic change. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.
What a wonderful story -- I am glad there are people like that in the world!
ReplyDeleteAnd that is one cute idea for an appreciation card for a teacher. Does he like having his hands painted? Our little guy only likes it if it is *his* idea.
Ben does not love arts and crafts - he tolerates it. He has gotten more patient with painting and crayons as he's gotten older. But his preference would be to tear the paper and eat the crayon.
ReplyDeleteBen's teacher has taught me that even if he just helps in one way, like handing the macaroni or whatever the piece is to the teacher, then she glues it, then he has helped with the project. This has helped me create expectations of Ben that he can tolerate and meet.
I didn't know last week was teacher appreciation week! What a creative way to say thank you :) Great work, Ben!
ReplyDelete~Michelle @ 5MFSN