Skip to main content

Part 2 of Detox

About three days after I stopped the Benadryl, and continued "detoxing" Ben from all his sleep aids, Michele Huggins, the editor at Charlotte Parent Magazine, emailed me about writing an article about the benefits of nutrition on special needs children for their September issue of Exceptional Child. I agreed immediately, excited that she would ask me to write again for the magazine.

I knew nothing about nutrition for special needs children except for a few buzzwords like gluten-free and, well... that's it.

Two days later, armed with articles and research about nutrition, information from interviews with nutritionists, doctors and families with success stories, I decided to launch Ben on a four week Casein Elimination Diet.

You will have to wait for my article to publish to find out all I learned, but what I will share is that I was a HUGE skeptic before I started my research. The time, money and energy were enough for me to say "no" to any change in diet, let alone Ben's reaction.

With no plan for what to do about Ben's sleep problems and lacking in sleep ourselves, we decided the four week dairy free diet was worth a shot.

Why dairy and not gluten? A few things I heard from the interviews with the doctors and nutritionists made me choose dairy. Ben's diet contained more dairy than gluten and would be the easiest to change with substitutes. It was also an easy shot in the dark.

It has not been hard to make the changes, and Ben has not complained one bit. His eating routine has changed somewhat, preferring his calories later in the day, rather than when he first wakes up, but other than that, he is the same old Ben, with better sleeping and pooping routines.

Changes made:
1. Avoid milk, ice cream, yogurt, cheese or butter. Avoid baked goods with these items also.
2. Add probiotic - one pill per day. We are using Culturelle.
3. Add chia seeds to smoothie*.
4. Add small amount of spinach (5 leaves) or kale to smoothie.
5. Vary fruit in smoothie.
6. Replace milk with Almond Milk.
7. Replace yogurt with coconut milk yogurt.
8. Record sleep, probiotic intake and bowel movements on a calendar.

Ben typically has one smoothie (12-16 oz.) per day and then eats a regular diet of kid friendly food for other meals.

Results after 10 Days:
1. No more constipation. Removed Miralax from diet.
2. Falls asleep in his bed at a reasonable time without any sleep aids.
3. Calmer and quieter in evening - most crazy and wild behavior has disappeared.

The addition of varied fruits and vegetables combined with the probiotic may be the reason for the change in BMs. I have not been able to find anything in the literature about constipation making it difficult to go to sleep so I do not think that was the sole cause of his night time antics. In a few articles, I have read that dairy may affect sleep.

Something unrelated to nutrition is that Ben wants to sleep without any clothing or undergarments. We have a nudist in the house! We are letting him sleep like this, and it seems to make him happy.

After ten days, I am still skeptical, or perhaps, wary that this may be some sort of coincidence. I need a longer time for this to work. My hope is that he is allergic/intolerant/affected by dairy and that his body responds by fighting sleep and acting crazy. Fingers crossed, please.

Ben has an appointment with a new neurologist in two weeks. I will ask for a referral to a nutritionist for a full evaluation, something he has never had completed.

To be continued...


Popular posts from this blog

Parenting an Adult Child with Disabilities

  "Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence

Impromptu Pet Therapy

  Ben met Doodle today. One of the staff at his day program brought him in. Ben loves dogs and these photos made my day. 

ABC's of ABA

A few weeks ago I attended a workshop presented by a behavior therapist. As it turned out, I went to a conference on the same topic over a year ago. I will describe what I have taken away from these methods in my own words - but please take a look at the links I have provided below. After I learned about this, life with children made a lot more sense to me. Not that this is earth shattering material, but it helped me to better understand the hows, whats and whys of behavior in children, and occasionally husbands. I am in no way an expert in this - just a parent who wants to share a behavior strategy that has worked in our home. I hope to inspire others to explore it further.  Any errors in information comes from me and cannot be blamed on the presenters. Also, you may have seen ABA - Applied Behavior Analysis - connected most often with Autism - please do not let this deter you if your child is not autistic. I use these methods with all my children, none of which are labeled au