Skip to main content

Taken for Granted

I know my title probably has some of you ready to hear me rant and rave about how I need to be appreciated for all the work I do...well at least not today. (Ryan breathes a sigh of relief.)

This post is about reading - just plain old reading words, like you are doing now.

Logan has started reading over the past couple of months. I am overjoyed by it, so proud of him I want him to show everyone his new skill. I am writing about this because I do not hear people talk about their child learning to read. Am I missing something? Is my appreciation so much more because of Ben's situation? Do people just not talk about it because it is considered bragging? I wish someone would help me out here.

Learning to read was not on my radar as something to be excited about. Of course, everyone asks about rolling over, sitting up, first steps and first words. But never did anyone warn me that hearing my child read an entire book would make me burst with pride.

Logan reads signs when we are driving, words around the house, spells out answers and requests my presence by spelling my name. He's reading our bedtime stories. When I say lights out, he asks for a few minutes to read.

Logan can't understand the enormity of it all. He is proud of himself, but he does not understand what it means to be able to read. Right now, it is a practical skill for him helping him to see the world around him with a different view.

The days of spelling something sensitive or secret are over, but I can live with that. I am excited that he will be able to read books that will build his already well developed imagination and creativity.

So if your child is learning to read, celebrate! It is not something to take lightly. Let them know about the treasure chest they have opened. To me, accomplishing all the things that kids do, in such a short period of time, is truly amazing.


Popular posts from this blog

Catching up with Ben

  I wish I had more time to write on eSpeciallyBen . Ben teaches us lessons on a regular basis: Smile often, give hugs, sit down and savor the moment, grab someone's hand to let them know you care and laugh with abandon–even if it annoys your brother. Ben will be 18 this summer. He attends high school in-person and enjoys seeing his classmates and teachers each day. In the photo above, it's 6 a.m. and he's can't wait to get on the bus. As for most people, the pandemic has been tough. Ben's in-person activities, camps and programs were canceled. He's happy to see grandma when we met on a Charlotte greenway or park. Ben seeks out social interactions and being quarantined away from friends and family was even more difficult because he didn't understand why. Ben's teacher sends me photos of him throughout the week. They just finished a rousing game of catch here.  Thank you for following eSpeciallyBen. If you want to see what I'm working on now, find me

A Lesson on Supplemental Security Income

In October, I received a letter from Social Security Administration saying that Ben no longer qualified for SSI AND we owed a very large over payment for two years of SSI that Ben did receive. The letter showed that we owned two of the same car. I knew this was wrong and immediately wrote a letter. I thought it was a computer glitch. Over the past five months, I have met with Social Security, spoke with several people over the phone and wrote countless letters providing documentation to show the cars we actually owned and filed appeals for the decision to revoke Ben's SSI during the two year period they think we owned these two cars. Tomorrow I have another meeting. I am hoping we can get this straightened out. This situation has caused a lot of stress for us and has taken a tremendous amount of our time trying to unravel the problem. I have not written a post in almost a month, partially because my brain power has been consumed with this issue and the bathroom saga (qualifies

Parenting an Adult Child with Disabilities: Talking About the Future

Ben in the middle with Dad (left), Carla Payne with Aging Care Matters and Mom This is the first of several posts about parenting an adult child with a disability. Ben will be 19 this summer; I am learning along the way. As always, I hope to pass on resources and wisdom. Discuss the future.  If your adult child is able to participate in planning for their future, ask them how they envision it. Let them draw a picture. Ask them to tell you a story. Maybe they can sign a few words that mean a lot to them. Find a way to get them involved. How do they see themselves living? By themselves, in a group home, with another family or with a sibling? Where do they want to live? In another city, in an apartment, in a house? How far away do they want to live from family? What level of independence can they handle? Do they want someone to check in on them? Do they want to find a job? Do they need a job coach or supportive employment? Who will help them with their finances? Is there someone they tru