Skip to main content

Especially Parents September Edition: Schools and Education



This month the writers for the eSpecially Parents series will focus on their child’s experience with schools and the educational system.

I have written a lot about Ben’s experiences at school. For the most part we have been very happy with his teachers, staff and academics. In preparing to write this post, I thought about why we have had good experiences and what went wrong when we did not. Here are three areas that I think help to summarize why we continue to be happy with the public school system.

  1. Expertise - I know that I am an expert on Ben because I have known him the longest and involved with every detail of his life, but I also value that the people working with Ben are most likely experts about how to best teach him. They are trained in educating children with needs such as Ben and have special techniques that work.  I begin with the assumption that they went into this field because they have a love for this particular profession and the work that they do.
  2. Relationships – Building positive relationships with everyone at the school helps when things are good, but also when things get rough, I already have something in place. Communication is easier when trust has already been built. It has to be a partnership between our family and the school - everyone has a difficult job to do and if we consider ourselves as a team, it can only help Ben.
  3. Involvement – I find a way to get involved at the school that Ben attends – anything from PTA to helping the teacher with the newsletter. Even if I am too busy to volunteer, sending emails to stay in touch is helpful too. Teachers have a tough job and any help from a parent is usually welcomed. When they request information or supplies, I make sure that I do my part in a timely manner.
When I started writing this post, all was good with Ben's school and class. Just days ago, I found out that Ben's teacher is leaving due to personal reasons. My biggest concern, and a time I can recall when Ben's school experience was terrible, is when there was inconsistency with staff. Although it appears that they have a plan in place for staff, my radar is up. I will need to be more aware of Ben's reaction to the school bus's arrival, what information is sent home and stay in contact with the principal. Although I am not a fan of surprise visits to the school, I will do what is necessary to feel comfortable with Ben's situation.

What things have you tried to help your family have a good experience with the school system?



If you have not seen the eSpecially Parents series, get more information here.

Comments

Popular posts from this blog

Parenting an Adult Child with Disabilities

  "Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence

He Ain't Heavy, He's My Brother

After my post, Brotherly Love , I received an email from a reader who reminded me of this song. I knew the song, but had never really thought about the words and the meaning behind them. I looked it up and thought others might see the lyrics in a new light.   He Ain't Heavy, He's My Brother The road is long With many a winding turn That leads us to who knows where Who knows when But I'm strong Strong enough to carry him He ain't heavy, he's my brother. So on we go His welfare is of my concern No burden is he to bear We'll get there For I know He would not encumber me If I'm laden at all I'm laden with sadness That everyone's heart Isn't filled with the gladness Of love for one another. It's a long, long road From which there is no return While we're on the way to there Why not share And the load Doesn't weigh me down at all He ain't heavy, he's my brother. He's my brother He ain't h

Kids Who Volunteer

On Saturday, Kidz That Care , a nonprofit organization in Charlotte, visited Ben's Easterseals UCP group home to "Pack the Pantry" with groceries and beautify the front porch with flowers. Ben joined the group outside and watched them plant poinsettias, sweep leaves and wipe down tables.  I wasn't sure how engaged Ben was in the activity but when I tried to take him for a walk, he made it clear he wanted to stay and observe. He hugged the one adult with the group (not the photo above).  When the group was leaving, Kidz That Care asked to take a photo with Ben. I noticed how Liam, one of the teen volunteers, kneeled next to Ben rather than stand behind him. Usually people not comfortable around Ben are hesitant to get close. I was impressed with Liam's willingness to bend down and be at his level. Then Ben leaned in for a hug and held on to Liam for several minutes. Ben's hands were tight around Liam's neck and he kept his head on Liam's shoulder. It w