- Relationships – Building positive relationships with everyone at the school helps when things are good, but also when things get rough, I already have something in place. Communication is easier when trust has already been built. It has to be a partnership between our family and the school - everyone has a difficult job to do and if we consider ourselves as a team, it can only help Ben.
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.