Skip to main content

Imp on the Loose


Last time I wrote about Ben's seizures, we were increasing a current medicine to see if it would stop the seizures without having adverse effects on Ben. When Ben became a zombie over spring break because of this new dosage, we quickly activated Plan B and started an entirely new medicine.

After almost three weeks on this new medicine, Ben is not totally seizure free, but he is having them less frequently and his energy level and personality are back.

And to demonstrate that he is feeling 110% - Ben has been repeatedly opening the door to his brothers' room and climbing in bed with Sean. At 11pm. At 11:30pm. And when Ben is told he cannot throw his brother out of bed, he laughs.

So Ben is back with almost no seizures, a seemingly good medicine, and he is up to his old antics again - crawling around the house, standing at counters, climbing on beds, chairs and sofas.

When Sean tells anyone who will listen how Ben threw him out of his bed twice, I sympathize with Sean and quietly give Ben a high five.
Labels:

Comments

  1. ChildlifeMay 18, 2011 at 2:15 AM

    LOL! What a character! I think this has to be one of my favorite Ben photos ever -- you really caught that mischievous twinkle in his eye ;)

    So glad to hear you've found a medication that is working better for him. We went through lots of meds trying to find the right therapy (for a different medical condition)too. It's a tough thing to work through. Lot's of prayers that Ben will continue to thrive on his new medication.

    ~Michelle

    ReplyDelete
  2. VMIMay 18, 2011 at 1:16 PM

    Thanks Michelle!

    ReplyDelete

Post a Comment

Thank you for reading my post. I appreciate you taking the time to comment. If you wish to contact me directly, please let me know and I will email you.

Popular posts from this blog

Parenting an Adult Child with Disabilities

  "Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence
1 comment
Read more

Parenting an Adult Child with Disabilities: From Group Home Placement to Discharge

  Last August, we moved Ben into an alternative family living (AFL) placement, about 90 minutes from our home in Charlotte. It was a three-bedroom house and Ben was given the largest bedroom with its own bathroom.  A typical AFL in North Carolina operates like this: a person with disabilities, the client, moves in with another family, couple or an individual. The client lives in the family’s home and the family receives payment in return for housing, feeding and caring for the client.  Ben’s AFL was unusual: A couple with extensive caregiving experience wanted to run a three-bed group home but needed to apply for the license through the state. They were willing to take Ben as the first resident in a house, separate from the one they lived in. The plan, according to the couple, was to get approval for the group home within a couple of months.  We ordered Ben a double bed, headboard, 54-inch television, new sheets, towels and blankets. Friends helped us move him in....
2 comments
Read more
  Ben is thriving in his group home in Charlotte. I wrote about what he's been up to in this story in Southpark Magazine:  Givers: All together Happy Holidays! Photo Credit Grant Baldwin Photography
Post a Comment
Read more