Skip to main content

May Edition eSpecially Parents: Paula's Story

My son, Tye, has occasional sensory issues that can overload his system. When this happens, my husband and I have witnessed Tye's very own, "Wolverine" manuever. Like Hugh Jackson's character in the X-men movie series, Tye will be walking with us in the mall and suddenly have the need to put his back flush against the wall and not move from that spot, looking around anxiously or with a huge grin on his face. 

We call it "the Wolverine" because in the first X-Men movie, when Hugh Jackson's character woke up in the lab at the school he rushed to the wall with his back to it looking around, trying to figure out what was going on.  We never know when it will pop up or just what will set him off.  Could be the lights, decorations, the acoustics...we haven't quite figured it out yet. 


Sensory issues have made life a bit interesting at times.  I never thought I would become a pretty good hairdresser. Tye can't tolerate the buzzer by his ears or nape of the neck well, or the cape for that matter. I did accidentally cut his ear lobe once - talk about guilt!  Boy does an earlobe bleed a lot.  In my defense, he moved.
Getting on an airplane is a definite so not happening.  I remember the last time we tried a few years ago, from JFK to Charlotte airport and back. I was flying with him, alone, to go see my husband.  Just getting through the check in and scanners was difficult.  Tons of different sounds, smells and other things to drive someone with sensory issues off the wall. 
Coming back from Charlotte airport, they let women and children board first.  Well, Tye had other plans.  We walked down the tunnel to the airplane while other families boarded, but Tye would not go past the area where the tunnel connected to the plane.  I told them to let the other passengers board. 
Passengers, flight attendants, the pilot... everyone tried to helpTye get on the plane, but no way would he allow it.  He protested like trying to get a cat into water.  At this point the whole flight was already boarded and they needed to leave.  Security came and saw the situation.  He overlooked protocol and let me call my husband on his cell to get his help.  My husband had to pick up my son with his legs and arms flailing around.  Luckily, we were seated in one of the first rows.  Once in and in his seat, Tye did great.  It was the getting on that was a real issue.  He just could not handle the jet fumes, the sounds in the tunnel and who knows what else.  I'm surprised we didn't get a round of applause when we finally got on that plane. 

I am so glad the security guard let my husband who did not have a ticket board the plane otherwise we would not have made that flight. You hear some stories about families who had really bad experiences with flight personnel or passengers on a plane when their disabled child is having issues that are just related to their disability not because of poor parenting or a badly behaved child.  I am glad, so far, I have not had to deal with too many ignorant, clueless or just plain mean people when my son has had issues that he can't control due to his autism. 

We drive when we travel anywhere now.  Makes it so much easier for us.  Tye's a great traveler by car.  We leave soon for a road trip up to NY - about a 10-12 hour drive, one way.  We are traveling with 2 dogs this time.  Let's see how that goes!

Sensory Websites:


eSpecially Parents is a monthly series featuring nine moms with amazing stories to tell. To catchup, read more here.

Comments

Popular posts from this blog

Parenting an Adult Child with Disabilities

  "Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence

He Ain't Heavy, He's My Brother

After my post, Brotherly Love , I received an email from a reader who reminded me of this song. I knew the song, but had never really thought about the words and the meaning behind them. I looked it up and thought others might see the lyrics in a new light.   He Ain't Heavy, He's My Brother The road is long With many a winding turn That leads us to who knows where Who knows when But I'm strong Strong enough to carry him He ain't heavy, he's my brother. So on we go His welfare is of my concern No burden is he to bear We'll get there For I know He would not encumber me If I'm laden at all I'm laden with sadness That everyone's heart Isn't filled with the gladness Of love for one another. It's a long, long road From which there is no return While we're on the way to there Why not share And the load Doesn't weigh me down at all He ain't heavy, he's my brother. He's my brother He ain't h

ABC's of ABA

A few weeks ago I attended a workshop presented by a behavior therapist. As it turned out, I went to a conference on the same topic over a year ago. I will describe what I have taken away from these methods in my own words - but please take a look at the links I have provided below. After I learned about this, life with children made a lot more sense to me. Not that this is earth shattering material, but it helped me to better understand the hows, whats and whys of behavior in children, and occasionally husbands. I am in no way an expert in this - just a parent who wants to share a behavior strategy that has worked in our home. I hope to inspire others to explore it further.  Any errors in information comes from me and cannot be blamed on the presenters. Also, you may have seen ABA - Applied Behavior Analysis - connected most often with Autism - please do not let this deter you if your child is not autistic. I use these methods with all my children, none of which are labeled au