Skip to main content

May Edition eSpecially Parents: Elisa's Story

Samson’s Winning Run

Of course it was raining, not too hard, but the black sky sailed in fast. So many treasured moments unfold under rain. Today the rain fell on my son running the 100 meter race at the Special Olympics. What he actually did was not exactly running – more like walking at a moderate pace, just slow enough to smile at all the people cheering him from the side of the track. Most of the people cheering I didn’t know, but he gets around and he gets known.

Samson really has absolutely no competitive spirit. None. He doesn’t care what sport it is, what kind of ball he is supposed to be throwing. For him, it’s only about the sheer thrill of the instant when everybody’s eyes are on him. Those are his winning moments. When he was younger, on Wednesday afternoons, I would take him to ride horses at a farm for hippotherapy. When the sweet horse would quicken into a gentle trot, Samson would let go of the reigns, his arms waving in the wind. The trainer would stop, of course, but he had his moment.
And that’s what it’s really about for him. Living in some second that is all his. I love that about him. He finds his own victories on his own terms. And I smile from the deepest part of my heart.



eSpecially Parents is a monthly series featuring nine moms with amazing stories to tell. To catch-up, read more here.

Comments

Popular posts from this blog

Parenting an Adult Child with Disabilities

  "Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence

He Ain't Heavy, He's My Brother

After my post, Brotherly Love , I received an email from a reader who reminded me of this song. I knew the song, but had never really thought about the words and the meaning behind them. I looked it up and thought others might see the lyrics in a new light.   He Ain't Heavy, He's My Brother The road is long With many a winding turn That leads us to who knows where Who knows when But I'm strong Strong enough to carry him He ain't heavy, he's my brother. So on we go His welfare is of my concern No burden is he to bear We'll get there For I know He would not encumber me If I'm laden at all I'm laden with sadness That everyone's heart Isn't filled with the gladness Of love for one another. It's a long, long road From which there is no return While we're on the way to there Why not share And the load Doesn't weigh me down at all He ain't heavy, he's my brother. He's my brother He ain't h

ABC's of ABA

A few weeks ago I attended a workshop presented by a behavior therapist. As it turned out, I went to a conference on the same topic over a year ago. I will describe what I have taken away from these methods in my own words - but please take a look at the links I have provided below. After I learned about this, life with children made a lot more sense to me. Not that this is earth shattering material, but it helped me to better understand the hows, whats and whys of behavior in children, and occasionally husbands. I am in no way an expert in this - just a parent who wants to share a behavior strategy that has worked in our home. I hope to inspire others to explore it further.  Any errors in information comes from me and cannot be blamed on the presenters. Also, you may have seen ABA - Applied Behavior Analysis - connected most often with Autism - please do not let this deter you if your child is not autistic. I use these methods with all my children, none of which are labeled au