Skip to main content

Uncovering Ben's Strengths, Part 2

My mom came with me to Ben's next neuropsychology appointment. We spent a few minutes with the doctor while Ben went off with the two young women proctors and his OT. They also had the NOVA Chat.

I was worried about how Ben would do - he had been up since 3am because of the crazy cab driver and drunken bicycle brawl the night before and performing on command is not usually one of Ben's finer moments.

Ben's OT found us in the waiting room about 20 minutes into their session. She needed water for Ben because he had requested some. She said he was doing remarkably well, although they had to ask one of the proctors to leave because Ben's flirting was getting in the way of the testing.

Ben lasted another 20 minutes, for a total of 40 minutes. The OT reported that he shocked the proctors who the week prior could not get anything out of him. Ben was able to tell them what words like bovine, marsupial, and oil can (thanks Bob the Builder) all meant.

The doctor called me 15 minutes after we left to say that Ben did very well. He made it to the vocabulary list that required phonetic spelling for the proctors.

Then she called me a few days later to say that the preliminary results show that Ben's memory (after reading a story, they tested his recall) was in the "Below Average" range. Average IQ is 90-110, and Below Average is in the 80 range. Ben's receptive vocabulary was in the high 70 range.

The doctor also believed that his scores may be even higher because it is hard to get accurate results with the way in which they have to test Ben. They had to modify the test to fit for him. With a verbal person, they would read a story and ask them to recite all the things they remember. With Ben, they asked him specific yes and no questions about the story.

This is all very exciting. We still have another testing session in November. These results only verify what many of us already knew - this kid has a lot going on in his head. Now we will have doctor's recommendations about best education and learning styles for Ben in order to develop an educational plan that will support and challenge him.

Comments

Popular posts from this blog

Catching up with Ben

  I wish I had more time to write on eSpeciallyBen . Ben teaches us lessons on a regular basis: Smile often, give hugs, sit down and savor the moment, grab someone's hand to let them know you care and laugh with abandon–even if it annoys your brother. Ben will be 18 this summer. He attends high school in-person and enjoys seeing his classmates and teachers each day. In the photo above, it's 6 a.m. and he's can't wait to get on the bus. As for most people, the pandemic has been tough. Ben's in-person activities, camps and programs were canceled. He's happy to see grandma when we met on a Charlotte greenway or park. Ben seeks out social interactions and being quarantined away from friends and family was even more difficult because he didn't understand why. Ben's teacher sends me photos of him throughout the week. They just finished a rousing game of catch here.  Thank you for following eSpeciallyBen. If you want to see what I'm working on now, find me

A Lesson on Supplemental Security Income

In October, I received a letter from Social Security Administration saying that Ben no longer qualified for SSI AND we owed a very large over payment for two years of SSI that Ben did receive. The letter showed that we owned two of the same car. I knew this was wrong and immediately wrote a letter. I thought it was a computer glitch. Over the past five months, I have met with Social Security, spoke with several people over the phone and wrote countless letters providing documentation to show the cars we actually owned and filed appeals for the decision to revoke Ben's SSI during the two year period they think we owned these two cars. Tomorrow I have another meeting. I am hoping we can get this straightened out. This situation has caused a lot of stress for us and has taken a tremendous amount of our time trying to unravel the problem. I have not written a post in almost a month, partially because my brain power has been consumed with this issue and the bathroom saga (qualifies

Parenting an Adult Child with Disabilities: Talking About the Future

Ben in the middle with Dad (left), Carla Payne with Aging Care Matters and Mom This is the first of several posts about parenting an adult child with a disability. Ben will be 19 this summer; I am learning along the way. As always, I hope to pass on resources and wisdom. Discuss the future.  If your adult child is able to participate in planning for their future, ask them how they envision it. Let them draw a picture. Ask them to tell you a story. Maybe they can sign a few words that mean a lot to them. Find a way to get them involved. How do they see themselves living? By themselves, in a group home, with another family or with a sibling? Where do they want to live? In another city, in an apartment, in a house? How far away do they want to live from family? What level of independence can they handle? Do they want someone to check in on them? Do they want to find a job? Do they need a job coach or supportive employment? Who will help them with their finances? Is there someone they tru