Skip to main content

The Big League





The Miracle League held a social this week to get us ready for the games this Saturday. Ben is playing for the Braves - a fact his Dad is very happy about. Volunteers, coaches and buddies were there for us to meet. We have a team mom who is also the coach's wife, and very excited players.

Logan and Sean had the best time throwing balls and meeting the other kids. I think for them, this will be a time to play with siblings who are in the same situation - not that I am looking for group counseling, but it is a good place to talk, meet and make friends. I get to socialize quite a bit with other parents, but Ryan does not and this can be a safe place to meet other dads facing similar stresses, emotions and questions.

The new field, the tons of volunteers, the coach's letter to us - none of it got me emotional. Reading the list of information we received today letting us know of the team party and that each player will receive a trophy is what got to me. Ben being part of a team, part of something large and good and especially for him, is what brought tears to my eyes. And well, the thought of a shiny new trophy for his shelf helped too.


Comments

Post a Comment

Thank you for reading my post. I appreciate you taking the time to comment. If you wish to contact me directly, please let me know and I will email you.

Popular posts from this blog

Parenting an Adult Child with Disabilities

  "Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence How I Make Being a Mom and Volunteer Work at this Group Home
1 comment
Read more

Parenting an Adult Child with Disabilities: From Group Home Placement to Discharge

  Last August, we moved Ben into an alternative family living (AFL) placement, about 90 minutes from our home in Charlotte. It was a three-bedroom house and Ben was given the largest bedroom with its own bathroom.  A typical AFL in North Carolina operates like this: a person with disabilities, the client, moves in with another family, couple or an individual. The client lives in the family’s home and the family receives payment in return for housing, feeding and caring for the client.  Ben’s AFL was unusual: A couple with extensive caregiving experience wanted to run a three-bed group home but needed to apply for the license through the state. They were willing to take Ben as the first resident in a house, separate from the one they lived in. The plan, according to the couple, was to get approval for the group home within a couple of months.  We ordered Ben a double bed, headboard, 54-inch television, new sheets, towels and blankets. Friends helped us move him in....
3 comments
Read more

How I Make Being a Mom and Volunteer Work at this Group Home

  In September, Ben celebrated three years living in a group home in Charlotte, North Carolina, with five other men. Ben lives 20 minutes from our house, and we see him several times a week for doctor's appointments, to drop off supplies, for group home events and sometimes because I just miss him. Ben occassionally sleeps over, and he often spends a weekend day hanging out on his favorite couch, watching videos at our house. This Easterseals PORT Health home is Ben's second placement. The first placement through another agency didn't work out, and he left after six months . We were wary of trying a new place, but it's worked out well. My husband, Ryan, and I have developed a partnership with ESPH. Over time, we've built mutual respect and trust with the residents and staff.  Here's what's worked for us: 1. Get involved with the group home. Ben lives with five other men in a six-bedroom house in Charlotte. On move-in day, Steven, one of the residents, made ...
4 comments
Read more