The Wildest Brother

In The Wildest Brother, a wonderful story about siblings by Cornelia Funke; the main character happens to be named Ben. Throughout the book, little brother Ben, protects his sister from imaginary ghosts, goblins, bears and any other creatures that may attack a big sister without warning. Ben does a great job during the day of saving her; however, when night comes, he is quick to jump into bed with her and let her take over the slaying of dragons and other things that go bump in the night.

We read this story a few nights ago and since then, Logan has been sleeping in bed with our own Ben. Not sure if the book prompted this arrangement and if it did, I am unsure who is protecting whom. Asking these questions would surely ruin the moment. And I certainly don't want to do that.

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Parenting an Adult Child with Disabilities

"Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence

Parenting an Adult Child with Disabilities: From Group Home Placement to Discharge

Last August, we moved Ben into an alternative family living (AFL) placement, about 90 minutes from our home in Charlotte. It was a three-bedroom house and Ben was given the largest bedroom with its own bathroom. A typical AFL in North Carolina operates like this: a person with disabilities, the client, moves in with another family, couple or an individual. The client lives in the family’s home and the family receives payment in return for housing, feeding and caring for the client. Ben’s AFL was unusual: A couple with extensive caregiving experience wanted to run a three-bed group home but needed to apply for the license through the state. They were willing to take Ben as the first resident in a house, separate from the one they lived in. The plan, according to the couple, was to get approval for the group home within a couple of months. We ordered Ben a double bed, headboard, 54-inch television, new sheets, towels and blankets. Friends helped us move him in....

Ben is thriving in his group home in Charlotte. I wrote about what he's been up to in this story in Southpark Magazine: Givers: All together Happy Holidays! Photo Credit Grant Baldwin Photography

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