Skip to main content

Gettin' a Little God

Perhaps it is just our family, but once we had kids, getting to church on a Sunday morning was impossible. Our excuses ran from too darn tired to just too damn tired. Our church, of which we have been members for over 8 years, has been understanding, baptizing our kids in spite of last seeing us at the prior child's baptism.

This year, we have made a successful attempt (and yes, it is only February) to attend Sunday School every week. A community helper comes with us to help Ben at his Sunday School class while Ryan and I go to an adult class. Logan is in class with Ben, and Sean attends a group for younger children.

The children start with music before class.





When we arrive on Sundays, volunteers are setting up for Room In the Inn. Everyone, especially the children, are able to help setup the beds for the guests who arrive Sunday evening.  We have also taken part in the youth programs at indoor water parks and bowling alleys. These activities have made the boys more comfortable with the group because they see the other kids outside of church.







Ben listens to Mr. Terry, the Sunday School teacher
We do not stay for the service, it would be too much for Ben and perhaps for us also. For now, this has been a great way to get back into the church, re-introduce ourselves to the members and get the boys acclimated to a new community. After the first Sunday, Logan said he wished everyday was Sunday so he could go to Sunday School again and again. It has been good for all of us.

 
Sometimes Ben needs a break from the lesson and walks the halls.

eSpecially Ben is one of five finalists for About.com Readers' Choice Awards for Favorite Special-Needs Parenting Blog. Please take a moment to vote.
 


Comments

  1. Hi! My name is Jodi and my husband Josh and I have two boys (3 and 1/2 years old and 2 years old). Our oldest son has global developmental delays bordering on severe and we have no diagnosis yet. I came across your blog because of the about.com blog awards (I voted for you!) and after reading your story/diagnosis, I just had to contact you. Our son sounds a lot like your son in many areas and our pursuit of a diagnosis is nearly the same as yours. We've only seen one neurologist and we're still working with the genetics department at Children's Mercy Hospital here in Kansas City. We've seen a developmental pediatrician as well and come up empty handed. I'd love to get in touch with you because we are actually planning to move to San Francisco this year and I'd love to hear about the studies your son is participating in.
    My blog is: http://jodiink.com and my email is ohladeedah@hotmail.com

    ReplyDelete
  2. Hey! This is great!! I think you are doing the right thing by sticking with Sunday School and not trying to stay for the whole service.
    What a priceless opportunity this is for your family!
    Faith

    ReplyDelete

Post a Comment

Thank you for reading my post. I appreciate you taking the time to comment. If you wish to contact me directly, please let me know and I will email you.

Popular posts from this blog

Catching up with Ben

  I wish I had more time to write on eSpeciallyBen . Ben teaches us lessons on a regular basis: Smile often, give hugs, sit down and savor the moment, grab someone's hand to let them know you care and laugh with abandon–even if it annoys your brother. Ben will be 18 this summer. He attends high school in-person and enjoys seeing his classmates and teachers each day. In the photo above, it's 6 a.m. and he's can't wait to get on the bus. As for most people, the pandemic has been tough. Ben's in-person activities, camps and programs were canceled. He's happy to see grandma when we met on a Charlotte greenway or park. Ben seeks out social interactions and being quarantined away from friends and family was even more difficult because he didn't understand why. Ben's teacher sends me photos of him throughout the week. They just finished a rousing game of catch here.  Thank you for following eSpeciallyBen. If you want to see what I'm working on now, find me

A Lesson on Supplemental Security Income

In October, I received a letter from Social Security Administration saying that Ben no longer qualified for SSI AND we owed a very large over payment for two years of SSI that Ben did receive. The letter showed that we owned two of the same car. I knew this was wrong and immediately wrote a letter. I thought it was a computer glitch. Over the past five months, I have met with Social Security, spoke with several people over the phone and wrote countless letters providing documentation to show the cars we actually owned and filed appeals for the decision to revoke Ben's SSI during the two year period they think we owned these two cars. Tomorrow I have another meeting. I am hoping we can get this straightened out. This situation has caused a lot of stress for us and has taken a tremendous amount of our time trying to unravel the problem. I have not written a post in almost a month, partially because my brain power has been consumed with this issue and the bathroom saga (qualifies

Parenting an Adult Child with Disabilities: Talking About the Future

Ben in the middle with Dad (left), Carla Payne with Aging Care Matters and Mom This is the first of several posts about parenting an adult child with a disability. Ben will be 19 this summer; I am learning along the way. As always, I hope to pass on resources and wisdom. Discuss the future.  If your adult child is able to participate in planning for their future, ask them how they envision it. Let them draw a picture. Ask them to tell you a story. Maybe they can sign a few words that mean a lot to them. Find a way to get them involved. How do they see themselves living? By themselves, in a group home, with another family or with a sibling? Where do they want to live? In another city, in an apartment, in a house? How far away do they want to live from family? What level of independence can they handle? Do they want someone to check in on them? Do they want to find a job? Do they need a job coach or supportive employment? Who will help them with their finances? Is there someone they tru