Perhaps it is just our family, but once we had kids, getting to church on a Sunday morning was impossible. Our excuses ran from too darn tired to just too damn tired. Our church, of which we have been members for over 8 years, has been understanding, baptizing our kids in spite of last seeing us at the prior child's baptism. This year, we have made a successful attempt (and yes, it is only February) to attend Sunday School every week. A community helper comes with us to help Ben at his Sunday School class while Ryan and I go to an adult class. Logan is in class with Ben, and Sean attends a group for younger children. The children start with music before class. When we arrive on Sundays, volunteers are setting up for Room In the Inn . Everyone, especially the children, are able to help setup the beds for the guests who arrive Sunday evening. We have also taken part in the youth programs at indoor water parks and bowling alleys. These activities have made the boys more c
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.