Skip to main content

Toilet Training - 6 months later

 In September I wrote about our journey to the world of toilet training. At the point of writing the post, we were about 6 days into it. Now we are at the 6 month mark - which is cause for celebration, or at least a reason to buy some new Spidey underwear!

Ben is doing fabulous at home and at school with toilet training. He is proud of himself, we are proud of ourselves and we only see progress ahead. That's not to say there are setbacks, which are usually caused by us not being on a consistent schedule with Ben.

 Big Mack Button

In the last months, we introduced a Big Mack button to try to help Ben communicate his toileting needs to us. Before Ben sits on his potty, he pushes the button and the recording says, "I have to go to the bathroom." Ben's school has been extremely supportive with our efforts to train Ben. At Ben's IEP meeting, the school agreed to use the same button, wording and process each time he used the bathroom. It is working! On a few occasions at our house, Ben has crawled or led others to the door of the bathroom or pushed the button on his own to show his need to use the bathroom. At school, he consistently pushes the button without being prompted.

Right now, Ben wears underwear with a pull-up over. He may have 1-2 accidents a week at school and a few at home so this helps make the messes more manageable. According to the behavior therapists we consult with, wearing the underwear is essential. The child needs to feel the results of an accident, which a pull-up alone prevents.

Our reward system is two fold: Ben watches a favorite DVD while sitting on the potty, and I sing a simple song I made up a long time ago when Ben has positive results.

Other developments I have noted is that Ben has woken up in the middle of the night, dry, but obviously annoyed. I have come to the conclusion, that he needs to use the bathroom. Not sure what it all means, but I am just taking note and seeing where it leads.

This summer, I may try removing the pull-up when Ben is at camp. That is a big step. We'll have to see if I am ready.

Comments

Popular posts from this blog

Parenting an Adult Child with Disabilities

  "Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence

He Ain't Heavy, He's My Brother

After my post, Brotherly Love , I received an email from a reader who reminded me of this song. I knew the song, but had never really thought about the words and the meaning behind them. I looked it up and thought others might see the lyrics in a new light.   He Ain't Heavy, He's My Brother The road is long With many a winding turn That leads us to who knows where Who knows when But I'm strong Strong enough to carry him He ain't heavy, he's my brother. So on we go His welfare is of my concern No burden is he to bear We'll get there For I know He would not encumber me If I'm laden at all I'm laden with sadness That everyone's heart Isn't filled with the gladness Of love for one another. It's a long, long road From which there is no return While we're on the way to there Why not share And the load Doesn't weigh me down at all He ain't heavy, he's my brother. He's my brother He ain't h

Kids Who Volunteer

On Saturday, Kidz That Care , a nonprofit organization in Charlotte, visited Ben's Easterseals UCP group home to "Pack the Pantry" with groceries and beautify the front porch with flowers. Ben joined the group outside and watched them plant poinsettias, sweep leaves and wipe down tables.  I wasn't sure how engaged Ben was in the activity but when I tried to take him for a walk, he made it clear he wanted to stay and observe. He hugged the one adult with the group (not the photo above).  When the group was leaving, Kidz That Care asked to take a photo with Ben. I noticed how Liam, one of the teen volunteers, kneeled next to Ben rather than stand behind him. Usually people not comfortable around Ben are hesitant to get close. I was impressed with Liam's willingness to bend down and be at his level. Then Ben leaned in for a hug and held on to Liam for several minutes. Ben's hands were tight around Liam's neck and he kept his head on Liam's shoulder. It w