Skip to main content

Toilet Training - 6 months later

 In September I wrote about our journey to the world of toilet training. At the point of writing the post, we were about 6 days into it. Now we are at the 6 month mark - which is cause for celebration, or at least a reason to buy some new Spidey underwear!

Ben is doing fabulous at home and at school with toilet training. He is proud of himself, we are proud of ourselves and we only see progress ahead. That's not to say there are setbacks, which are usually caused by us not being on a consistent schedule with Ben.

 Big Mack Button

In the last months, we introduced a Big Mack button to try to help Ben communicate his toileting needs to us. Before Ben sits on his potty, he pushes the button and the recording says, "I have to go to the bathroom." Ben's school has been extremely supportive with our efforts to train Ben. At Ben's IEP meeting, the school agreed to use the same button, wording and process each time he used the bathroom. It is working! On a few occasions at our house, Ben has crawled or led others to the door of the bathroom or pushed the button on his own to show his need to use the bathroom. At school, he consistently pushes the button without being prompted.

Right now, Ben wears underwear with a pull-up over. He may have 1-2 accidents a week at school and a few at home so this helps make the messes more manageable. According to the behavior therapists we consult with, wearing the underwear is essential. The child needs to feel the results of an accident, which a pull-up alone prevents.

Our reward system is two fold: Ben watches a favorite DVD while sitting on the potty, and I sing a simple song I made up a long time ago when Ben has positive results.

Other developments I have noted is that Ben has woken up in the middle of the night, dry, but obviously annoyed. I have come to the conclusion, that he needs to use the bathroom. Not sure what it all means, but I am just taking note and seeing where it leads.

This summer, I may try removing the pull-up when Ben is at camp. That is a big step. We'll have to see if I am ready.

Comments

Popular posts from this blog

Catching up with Ben

  I wish I had more time to write on eSpeciallyBen . Ben teaches us lessons on a regular basis: Smile often, give hugs, sit down and savor the moment, grab someone's hand to let them know you care and laugh with abandon–even if it annoys your brother. Ben will be 18 this summer. He attends high school in-person and enjoys seeing his classmates and teachers each day. In the photo above, it's 6 a.m. and he's can't wait to get on the bus. As for most people, the pandemic has been tough. Ben's in-person activities, camps and programs were canceled. He's happy to see grandma when we met on a Charlotte greenway or park. Ben seeks out social interactions and being quarantined away from friends and family was even more difficult because he didn't understand why. Ben's teacher sends me photos of him throughout the week. They just finished a rousing game of catch here.  Thank you for following eSpeciallyBen. If you want to see what I'm working on now, find me

A Lesson on Supplemental Security Income

In October, I received a letter from Social Security Administration saying that Ben no longer qualified for SSI AND we owed a very large over payment for two years of SSI that Ben did receive. The letter showed that we owned two of the same car. I knew this was wrong and immediately wrote a letter. I thought it was a computer glitch. Over the past five months, I have met with Social Security, spoke with several people over the phone and wrote countless letters providing documentation to show the cars we actually owned and filed appeals for the decision to revoke Ben's SSI during the two year period they think we owned these two cars. Tomorrow I have another meeting. I am hoping we can get this straightened out. This situation has caused a lot of stress for us and has taken a tremendous amount of our time trying to unravel the problem. I have not written a post in almost a month, partially because my brain power has been consumed with this issue and the bathroom saga (qualifies

Parenting an Adult Child with Disabilities: Talking About the Future

Ben in the middle with Dad (left), Carla Payne with Aging Care Matters and Mom This is the first of several posts about parenting an adult child with a disability. Ben will be 19 this summer; I am learning along the way. As always, I hope to pass on resources and wisdom. Discuss the future.  If your adult child is able to participate in planning for their future, ask them how they envision it. Let them draw a picture. Ask them to tell you a story. Maybe they can sign a few words that mean a lot to them. Find a way to get them involved. How do they see themselves living? By themselves, in a group home, with another family or with a sibling? Where do they want to live? In another city, in an apartment, in a house? How far away do they want to live from family? What level of independence can they handle? Do they want someone to check in on them? Do they want to find a job? Do they need a job coach or supportive employment? Who will help them with their finances? Is there someone they tru