Skip to main content

Miracle in the Works

Happy New Year! We had a quiet and relaxing holiday break. Chinese food for Christmas dinner, several pajama days and a few visits to local parks made for much needed family time. Alas, reality has set in - school is back in session, cold weather has hit and we are back into the swing of our regularly scheduled program.



Ben wears ankle foot orthotics (AFO's) to help him walk. They give his lower leg and ankle support and help keep his foot in the proper place. His feet tend to pronate - turn in so he is walking on his arch. Without these orthotics, he would not be able to walk as much as he does in his walker at school and with assistance at home.

AFOs also have their downfall - they are big, bulky, difficult to get on and very expensive (about $1000-2000 a pair). It is recommended to recast every six months for new orthotics, especially if your child's foot is growing. Although Ben's shoes are rough looking after six months, the AFO's themselves are in fairly good shape. They are made of hard plastic and since he does not run or play in the mud, they are clean and re-usable. It seems a waste to throw them out.

Ideally, the orthotic needs to be made for a specific person. In the United States, it is illegal to reuse orthotics. In places like third world countries where access to healthcare and resources for orthotics may be unavailable, it is possible to reuse them.

There are organizations that will collect the used orthotics from individuals or from orthotic companies and send them to those in need. Here is a group of organizations working together to donate used braces:

Miracle Feet - Website
         Send Braces

Mommies of Miracles - Facebook Page

Mommies of Miracles - Website
        Donation Program Flyer

If you know of any other organizations doing something similar, please add in comment section and I will add to the Resource Page.


Comments

  1. I wish I had known this when I threw out four pairs of orthotics last year. I'm about to have my daughter refitted for new ones and will surely donate her current pair. Thanks for the resources!

    ReplyDelete
  2. I know how you feel - I am excited that Ben's braces may be re-used by other kids. Please pass this on to others - most of us want to get the equipment we cannot use recycled.

    ReplyDelete
  3. Ben looks just outstanding using those AFO's. When I was a child, I wore AFO's helping keep my ankles from atrophying. His looks almost as mine looked. Long ago were the days where I would velcro myself into my AFO's. Here's to hoping that Ben has continued success with his health and those AFO's.
    http://www.scorthotic.com

    ReplyDelete

Post a Comment

Thank you for reading my post. I appreciate you taking the time to comment. If you wish to contact me directly, please let me know and I will email you.

Popular posts from this blog

Parenting an Adult Child with Disabilities

  "Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence

He Ain't Heavy, He's My Brother

After my post, Brotherly Love , I received an email from a reader who reminded me of this song. I knew the song, but had never really thought about the words and the meaning behind them. I looked it up and thought others might see the lyrics in a new light.   He Ain't Heavy, He's My Brother The road is long With many a winding turn That leads us to who knows where Who knows when But I'm strong Strong enough to carry him He ain't heavy, he's my brother. So on we go His welfare is of my concern No burden is he to bear We'll get there For I know He would not encumber me If I'm laden at all I'm laden with sadness That everyone's heart Isn't filled with the gladness Of love for one another. It's a long, long road From which there is no return While we're on the way to there Why not share And the load Doesn't weigh me down at all He ain't heavy, he's my brother. He's my brother He ain't h

Kids Who Volunteer

On Saturday, Kidz That Care , a nonprofit organization in Charlotte, visited Ben's Easterseals UCP group home to "Pack the Pantry" with groceries and beautify the front porch with flowers. Ben joined the group outside and watched them plant poinsettias, sweep leaves and wipe down tables.  I wasn't sure how engaged Ben was in the activity but when I tried to take him for a walk, he made it clear he wanted to stay and observe. He hugged the one adult with the group (not the photo above).  When the group was leaving, Kidz That Care asked to take a photo with Ben. I noticed how Liam, one of the teen volunteers, kneeled next to Ben rather than stand behind him. Usually people not comfortable around Ben are hesitant to get close. I was impressed with Liam's willingness to bend down and be at his level. Then Ben leaned in for a hug and held on to Liam for several minutes. Ben's hands were tight around Liam's neck and he kept his head on Liam's shoulder. It w