Skip to main content

Been There, Done That

After 10 years of being in the world of special needs, we have pretty much heard it all - what we can do for Ben, what we should buy and try and how we should do certain things. For the most part, we have done everything suggested, including, but definitely not exhaustive - chewy tubes, electric impulse machines, ABA therapy, special utensils, foam seats, kinesio tape, weighted vests, vibrating pillows, exercise balls, whistles, vibrating pens and even cloth napkins.

When Ben starts with a new therapist, they make suggestions based on their experience and observations. More than likely, we have tried the technique or equipment at an earlier time in Ben's life. It has either worked and we still do it, worked but not anymore, worked but not worth the hassle, worked but we got lazy or not worked at all.

A few weeks ago, the vibrating toothbrush idea was brought up to me again. I would be lying if I did not share that I do get tired of these ideas. My responses have run the gamut: "Yup, we've done that.", "Got those in the closet.", "Ben hated that.", "Ben ate it.", "Nope, just not doing it." I am careful not to roll my eyes, at least in anyone's line of sight.

Ben received a vibrating toothbrush in his Christmas stocking from Grandma. (She is a past special education teacher and ABA therapist, a proponent of the vibrating toothbrush, and very sneaky.) Ben had one several years ago and ruined it quickly by biting so hard on the brush that he stopped the vibrating. Needless to say, he seemed to hate it, and we stopped using that type of toothbrush.

Since we had this new toothbrush, we tried it. At 11 years old, Ben loves the vibrating toothbrush. So much, in fact, that we asked Grandpa, on the other side, to get him a few more.

Lesson learned - been there, done that - has expanded to - been there, done that, let's try it again!






Comments

Popular posts from this blog

Parenting an Adult Child with Disabilities

  "Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence

Parenting an Adult Child with Disabilities: From Group Home Placement to Discharge

  Last August, we moved Ben into an alternative family living (AFL) placement, about 90 minutes from our home in Charlotte. It was a three-bedroom house and Ben was given the largest bedroom with its own bathroom.  A typical AFL in North Carolina operates like this: a person with disabilities, the client, moves in with another family, couple or an individual. The client lives in the family’s home and the family receives payment in return for housing, feeding and caring for the client.  Ben’s AFL was unusual: A couple with extensive caregiving experience wanted to run a three-bed group home but needed to apply for the license through the state. They were willing to take Ben as the first resident in a house, separate from the one they lived in. The plan, according to the couple, was to get approval for the group home within a couple of months.  We ordered Ben a double bed, headboard, 54-inch television, new sheets, towels and blankets. Friends helped us move him in....
  Ben is thriving in his group home in Charlotte. I wrote about what he's been up to in this story in Southpark Magazine:  Givers: All together Happy Holidays! Photo Credit Grant Baldwin Photography