I wish I had more time to write on eSpeciallyBen . Ben teaches us lessons on a regular basis: Smile often, give hugs, sit down and savor the moment, grab someone's hand to let them know you care and laugh with abandon–even if it annoys your brother. Ben will be 18 this summer. He attends high school in-person and enjoys seeing his classmates and teachers each day. In the photo above, it's 6 a.m. and he's can't wait to get on the bus. As for most people, the pandemic has been tough. Ben's in-person activities, camps and programs were canceled. He's happy to see grandma when we met on a Charlotte greenway or park. Ben seeks out social interactions and being quarantined away from friends and family was even more difficult because he didn't understand why. Ben's teacher sends me photos of him throughout the week. They just finished a rousing game of catch here. Thank you for following eSpeciallyBen. If you want to see what I'm working on now, find me
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.
so cool! I bet everyone was so proud of him!
ReplyDeleteHoly Cow! I am in tears watching that!
ReplyDeleteEveryone is really proud of him - even strangers at the pool understand that he is doing something special. And he does not want our hands on him any more - he pushes us away.
ReplyDeleteWow! That is awesome! Ben is walking and getting around in that pool so spectacularly! My son, who has ACC, has also been doing aquatic therapy for awhile, and I have been astounded and so surprised by the many positive results.
ReplyDelete*cheers for independent Ben, who looks like he is having a terrific time playing in the pool*