Skip to main content

Say It Again, Baby!

We waited six months to receive Ben's NOVA Chat 10. It arrived about three days before the burglary. It sat on the kitchen counter with one sheet of paper covering it. It looks like an ipad. That it did not catch the thieves' eyes, I can only believe it was Ben's guardian angels hard at work.

This is the homepage for a helper to use first.
Each button goes to a field of  two for Ben to make a choice.
After many hours of setting up a simple platform we can use with Ben, we started using it just two days ago. We all expected that it may take a year or even more for Ben to get the concept. I believed that if we stuck with the process, he would eventually "get it".

It took 30 seconds or less for Ben to "get it".

Let me give you a few examples to illustrate what I am talking about. In each of the examples below, Ben was given a field of two choices.

1. Smoothie or Cottage Cheese, Ben chose Cottage Cheese. He ate it, three different meal times. Our "go to" food for Ben is a smoothie. He visits our fridge and we usually get out the smoothie for him. We were sure he made the wrong choice and would push it away. We were wrong...and shocked.

2. Smoothie or Snack, Ben chose Snack. He ate the crackers and milk I gave him. After school, Ben gets his afternoon smoothie. When given the choice, he wanted something different. I may have to retire the blender.

3. Watch a DVD or Sit in Quiet. Ben chose quiet. Ben sat on the sofa for 20 minutes. He can crawl to the TV and get out the DVDs. If he was not happy with his choice, he could have done that, but he did not.


4. Use Walker or Use Chair. Ben made appropriate choices each time at a church gathering. It prevented him from wriggling out of his walker, often causing him to fall and hit his head. I will add real photos of his walker and chair to the device.


5. Take a Bath or Continue to Use Toilet - Ben chose bath and had a great time floating in the tub.

6. I Need a Break or I Can Do More Work - At physical therapy, he was offered these options and he worked harder than normally after choosing the latter choice.


7. I Want a Fig Newton or I Want a Z-Vibe - Ben's speech therapist, a quick learner, made a new page with those two choices. During her session with Ben, he made choices throughout, and very happy to do so.


The system we set up is easy for us and Ben. Anyone who comes in contact with Ben can use the system we have designed. It does require an adult or trained child to use it with him. Our hope is that we can eventually introduce more choices on a page. Right now, we are focusing on using it consistently at home. I hope to start using it in the school setting in January. We will have to build a school system with its own specific choices before we can do that.

At a later date, I will explain in detail how I setup the platform. Right now, I just wanted to share the excitement. This counts as one of those unexpected thrilling adventures.


* A very strange aside: While pregnant with Ben, I got it in my head that we had to name our baby, whether boy or girl, "Nova". Eventually, I allowed new names to be added to the list; however, the name, Nova, was a strong force within me. Hmmm...something to ponder.






Comments

  1. wow, this looks so much like the program Junior uses on the ipad to communicate. Way to go Ben, can't wait to see more.

    ReplyDelete

Post a Comment

Thank you for reading my post. I appreciate you taking the time to comment. If you wish to contact me directly, please let me know and I will email you.

Popular posts from this blog

Parenting an Adult Child with Disabilities

  "Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence

He Ain't Heavy, He's My Brother

After my post, Brotherly Love , I received an email from a reader who reminded me of this song. I knew the song, but had never really thought about the words and the meaning behind them. I looked it up and thought others might see the lyrics in a new light.   He Ain't Heavy, He's My Brother The road is long With many a winding turn That leads us to who knows where Who knows when But I'm strong Strong enough to carry him He ain't heavy, he's my brother. So on we go His welfare is of my concern No burden is he to bear We'll get there For I know He would not encumber me If I'm laden at all I'm laden with sadness That everyone's heart Isn't filled with the gladness Of love for one another. It's a long, long road From which there is no return While we're on the way to there Why not share And the load Doesn't weigh me down at all He ain't heavy, he's my brother. He's my brother He ain't h

ABC's of ABA

A few weeks ago I attended a workshop presented by a behavior therapist. As it turned out, I went to a conference on the same topic over a year ago. I will describe what I have taken away from these methods in my own words - but please take a look at the links I have provided below. After I learned about this, life with children made a lot more sense to me. Not that this is earth shattering material, but it helped me to better understand the hows, whats and whys of behavior in children, and occasionally husbands. I am in no way an expert in this - just a parent who wants to share a behavior strategy that has worked in our home. I hope to inspire others to explore it further.  Any errors in information comes from me and cannot be blamed on the presenters. Also, you may have seen ABA - Applied Behavior Analysis - connected most often with Autism - please do not let this deter you if your child is not autistic. I use these methods with all my children, none of which are labeled au