Skip to main content

Grin Kids, Part II

During the summer I wrote about applying to a special program called Grin Kids, an organization that raises money to send chronically disabled and terminally ill children and their families to Disney World. I have been waiting for a photo to go with this post, but seems like the photo is lost so here it is sans photo.

On July 30, Ben's 7th Birthday, we were on our family vacation at Atlantic Beach, NC. Ryan had heard in Charlotte that Ace & TJ, the radio talk show hosts, who started Grin Kids, would be in Atlantic Beach sometime this summer. Ryan thought we had missed the weekend, but in listening to the local station I realized that we were exactly on time.

Let me digress for a moment about my star struck husband. Ryan recently came home so excited about meeting Muggsy Bogues at the gas station. Muggsy was a well known NBA player for the Charlotte Hornets during their hay day in the late 1980's and early 1990's. He was most known for his height - 5'3". Ryan's excitement could not be contained. He got to shake Mugsy's hand - it was a big deal.

Back to the beach. When I told Ryan that we did not miss Ace & TJ and that we could go to a "Meet and Greet" that very night for Ben's birthday, Ryan got nervous and almost backed out. He shared with me that he listens to them every morning and knows all there is to know about the show. (Married 12 years and the man still surprises me.) When we got there, I could tell Ryan was seriously unnerved. To take the pressure off, Ben and I went ahead into the restaurant to get a table while Ryan stayed behind with Logan and Sean at the outside playground.

When Ben and I walked into the outdoor beach restaurant, Ben was an instant celebrity. Ace & TJ and their whole crew surrounded him, took photos, asked about our family. And when they heard it was Ben's birthday, the attention was intensified. I have to admit, it was fun. It felt like the paparazzi had descended. Ben had the best look on his face - clearly he was savoring the attention. I casually mentioned that my husband was over at the playground and a big fan of their show. Immediately, Ace, TJ and Yankee Pete made their way over there.

Needless to say, Ryan was tongue tied when all three walked over to him. We had a great time that night - a perfect birthday celebration for Ben.

As for Ben getting accepted to the Disney Adventure...not this year. We will apply again for next year.


Popular posts from this blog

Parenting an Adult Child with Disabilities

  "Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence

He Ain't Heavy, He's My Brother

After my post, Brotherly Love , I received an email from a reader who reminded me of this song. I knew the song, but had never really thought about the words and the meaning behind them. I looked it up and thought others might see the lyrics in a new light.   He Ain't Heavy, He's My Brother The road is long With many a winding turn That leads us to who knows where Who knows when But I'm strong Strong enough to carry him He ain't heavy, he's my brother. So on we go His welfare is of my concern No burden is he to bear We'll get there For I know He would not encumber me If I'm laden at all I'm laden with sadness That everyone's heart Isn't filled with the gladness Of love for one another. It's a long, long road From which there is no return While we're on the way to there Why not share And the load Doesn't weigh me down at all He ain't heavy, he's my brother. He's my brother He ain't h

ABC's of ABA

A few weeks ago I attended a workshop presented by a behavior therapist. As it turned out, I went to a conference on the same topic over a year ago. I will describe what I have taken away from these methods in my own words - but please take a look at the links I have provided below. After I learned about this, life with children made a lot more sense to me. Not that this is earth shattering material, but it helped me to better understand the hows, whats and whys of behavior in children, and occasionally husbands. I am in no way an expert in this - just a parent who wants to share a behavior strategy that has worked in our home. I hope to inspire others to explore it further.  Any errors in information comes from me and cannot be blamed on the presenters. Also, you may have seen ABA - Applied Behavior Analysis - connected most often with Autism - please do not let this deter you if your child is not autistic. I use these methods with all my children, none of which are labeled au