After 10 years of being in the world of special needs, we have pretty much heard it all - what we can do for Ben, what we should buy and try and how we should do certain things. For the most part, we have done everything suggested, including, but definitely not exhaustive - chewy tubes, electric impulse machines, ABA therapy, special utensils, foam seats, kinesio tape, weighted vests, vibrating pillows, exercise balls, whistles, vibrating pens and even cloth napkins. When Ben starts with a new therapist, they make suggestions based on their experience and observations. More than likely, we have tried the technique or equipment at an earlier time in Ben's life. It has either worked and we still do it, worked but not anymore, worked but not worth the hassle, worked but we got lazy or not worked at all. A few weeks ago, the vibrating toothbrush idea was brought up to me again. I would be lying if I did not share that I do get tired of these ideas. My responses have run the gamut:
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.