Definitely the BEFORE photo! Ben was scheduled to have this Video EEG in December, but he came down with bronchitis and a double ear infection so it was postponed until this week. We are lucky this happened because I read a post on 5 Minutes for Special Needs about EEGs and asked the blogger a few questions. She emailed me with answers and added a lot of other information. Without her insight, I would have been unprepared for this experience. Thank you Gina at Special Happens . Because I lacked information to even ask the right questions, I thought I would document our visit and others can learn from our experience. Of course, hospitals and doctors are all different, but this will at least give an overview of what to expect. What to Bring Button front shirts - once the electrodes are on, nothing is getting over that head Extra pants, comfy clothes for you and your child DVDs or Videotapes, music, games, books - some hospitals provide these things, but ones from home may work
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.