Skip to main content

4 Paws for Luke

I grew up next door to my cousins, Matthew and Melissa. My Dad and their dad are identical twins and besides living next door in exactly the same house, they drove the same truck (different colors) and owned businesses together. The family joke was, if they are not together, they are on the phone with one another. Unfortunately, the cousins did not always follow example and get along.

Even today, I remember the anger for Matt when he crayoned our entire outside walkway. I think he was only 4 years old, but some things you never forget.

Years later, I was here in Charlotte when Matt and his wife Denise moved to Gaffney, SC. On a few occasions, I was able to put aside my anger over the crayon disaster and get together with them. We found out that as adults, we could be friends. Eventually they moved to Texas to start a physical therapy clinic. We have stayed in touch and have been a support for one another as parents of kids with special needs.

In 2011, when I started the eSpecially Parents Series, Denise shared her story about their son Luke. Denise is an inspiration to all mothers - she has sought out every possible treatment for Luke and has learned so much about ways to help him. I admire her strength and perseverance.

Recently she sent me this. Feel free to share with others - raising $15,000 will be a challenge, but one they can meet with help.

UPDATE

*** Over $15,000 was raised within 12 days of setting up this website.***



This is my son, Luke.  He is a cute little 7 year old boy who loves to ride horses, play at the park, and ride his Power Wheels.  We are grateful for his health and all the milestones he is meeting on his own timeline….some we thought he may not meet at all.    

Luke was born with a rare genetic condition called CHARGE syndrome which causes a wide range of challenges such as hearing loss, heart defects, developmental delays, sensory and balance issues.  Luke also was diagnosed with autism and struggles with things such as communication, socialization, and staying on task.

As his mother, I am always thinking of what to do to make sure Luke has the most fulfilling life possible.  In my research I came across an agency called 4 Paws for Ability in Xenia Ohio.  They place autism assistance dogs with kids like Luke.  These dogs can be trained to help manage behaviors by calming tantrums, disrupt stemming behaviors, prevent wandering, and can even be trained to locate the child who may have wandered off.   The dog can also provide companionship to a child, like Luke, who really struggles with socialization.  

Because of all this, these dogs require many months of specialized training that can cost over $22,000.  4 Paws for ability asks families to help raise a portion of this, $15,000, to qualify for an assistance dog.  I know an autism assistance dog would be great for Luke and I am so excited to begin this journey.

Please consider donating if you can and share Luke's page to help him bring his dog home.  



Thank you!

Denise Infanzon

Comments

Popular posts from this blog

How I Make Being a Mom and Volunteer Work at this Group Home

  In September, Ben celebrated three years living in a group home in Charlotte, North Carolina, with five other men. Ben lives 20 minutes from our house, and we see him several times a week for doctor's appointments, to drop off supplies, for group home events and sometimes because I just miss him. Ben occassionally sleeps over, and he often spends a weekend day hanging out on his favorite couch, watching videos at our house. This Easterseals PORT Health home is Ben's second placement. The first placement through another agency didn't work out, and he left after six months . We were wary of trying a new place, but it's worked out well. My husband, Ryan, and I have developed a partnership with ESPH. Over time, we've built mutual respect and trust with the residents and staff.  Here's what's worked for us: 1. Get involved with the group home. Ben lives with five other men in a six-bedroom house in Charlotte. On move-in day, Steven, one of the residents, made ...

Gadgets & Gizmos - Part 6: Landeez Chair

We spent last week at the beach near Atlantic Beach in North Carolina. At Fort Macon Park , they have a special chair for people like Ben who may need extra help moving in the sand and water. The chair is made by Landeez . We were amazed by this chair. It did travel over the sand and in small amounts of water with ease. We bought an inexpensive strap to go around Ben's waist so he would not fall out.  I thought that Ben could go farther in the water sitting in the chair, but it does eventually float...away if in too deep of water. Ben got tired of sitting in it and wiggled his way under the strap. For the most part, it is a great invention and it made it easier for us to keep Ben safe on the beach. If he had been interested in a long walk on the beach, this would have worked great for him.

Parenting an Adult Child with Disabilities: From Group Home Placement to Discharge

  Last August, we moved Ben into an alternative family living (AFL) placement, about 90 minutes from our home in Charlotte. It was a three-bedroom house and Ben was given the largest bedroom with its own bathroom.  A typical AFL in North Carolina operates like this: a person with disabilities, the client, moves in with another family, couple or an individual. The client lives in the family’s home and the family receives payment in return for housing, feeding and caring for the client.  Ben’s AFL was unusual: A couple with extensive caregiving experience wanted to run a three-bed group home but needed to apply for the license through the state. They were willing to take Ben as the first resident in a house, separate from the one they lived in. The plan, according to the couple, was to get approval for the group home within a couple of months.  We ordered Ben a double bed, headboard, 54-inch television, new sheets, towels and blankets. Friends helped us move him in....