Skip to main content

Superpowers

"If you could give one superpower to someone else in your family, what would it be and why?"

This was the question texted to me in early April. A few weeks earlier, I joined a free service that sends a daily text with a question. I was apprehensive about this question because I was not sure what Logan and Sean would say about superpowers and Ben. 

Within seconds of being asked the question, Logan and Sean chose Ben to receive the superpowers. Logan thought Ben would be best served with mind reading abilities so he would know what everyone was thinking.  Sean thought the ability to fix or build anything should be Ben's superpower because he loves Bob the Builder so much. 

I had braced myself for their answers, assuming they would give Ben powers to change him into a typical kid. But they did not - they saw something else that I did not. Leave it to them to be far more perceptive and creative than me. 

My friend and running partner, Ailen Arreaza, works for a new organization called ParentsTogether. ParentsTogether helps parents connect with one another to share resources and support. One service they offer is Q4KIDZ. They send out a question each day to you at whatever time of the day you request in a format you prefer (email, phone text).

I receive a text message at 4pm each day when I am walking to pick up my kids from school. Either on that walk or sometime at dinner, I ask the Q4KIDZ question. Questions are varied, thought-provoking and get family conversations started. We had fun with this one, "What is the first memory that you have?" The answers to some of these questions may surprise you. 

If you are interested in checking out the organization or even signing up for the free Q4KIDZ, check out these links:

www.parents-together.org

Sign up by texting Q4 to 30644 or by going here: http://goo.gl/MDMTrn 

Comments

Popular posts from this blog

Catching up with Ben

  I wish I had more time to write on eSpeciallyBen . Ben teaches us lessons on a regular basis: Smile often, give hugs, sit down and savor the moment, grab someone's hand to let them know you care and laugh with abandon–even if it annoys your brother. Ben will be 18 this summer. He attends high school in-person and enjoys seeing his classmates and teachers each day. In the photo above, it's 6 a.m. and he's can't wait to get on the bus. As for most people, the pandemic has been tough. Ben's in-person activities, camps and programs were canceled. He's happy to see grandma when we met on a Charlotte greenway or park. Ben seeks out social interactions and being quarantined away from friends and family was even more difficult because he didn't understand why. Ben's teacher sends me photos of him throughout the week. They just finished a rousing game of catch here.  Thank you for following eSpeciallyBen. If you want to see what I'm working on now, find me

A Lesson on Supplemental Security Income

In October, I received a letter from Social Security Administration saying that Ben no longer qualified for SSI AND we owed a very large over payment for two years of SSI that Ben did receive. The letter showed that we owned two of the same car. I knew this was wrong and immediately wrote a letter. I thought it was a computer glitch. Over the past five months, I have met with Social Security, spoke with several people over the phone and wrote countless letters providing documentation to show the cars we actually owned and filed appeals for the decision to revoke Ben's SSI during the two year period they think we owned these two cars. Tomorrow I have another meeting. I am hoping we can get this straightened out. This situation has caused a lot of stress for us and has taken a tremendous amount of our time trying to unravel the problem. I have not written a post in almost a month, partially because my brain power has been consumed with this issue and the bathroom saga (qualifies

Parenting an Adult Child with Disabilities: Talking About the Future

Ben in the middle with Dad (left), Carla Payne with Aging Care Matters and Mom This is the first of several posts about parenting an adult child with a disability. Ben will be 19 this summer; I am learning along the way. As always, I hope to pass on resources and wisdom. Discuss the future.  If your adult child is able to participate in planning for their future, ask them how they envision it. Let them draw a picture. Ask them to tell you a story. Maybe they can sign a few words that mean a lot to them. Find a way to get them involved. How do they see themselves living? By themselves, in a group home, with another family or with a sibling? Where do they want to live? In another city, in an apartment, in a house? How far away do they want to live from family? What level of independence can they handle? Do they want someone to check in on them? Do they want to find a job? Do they need a job coach or supportive employment? Who will help them with their finances? Is there someone they tru