Skip to main content

No Such Thing As Free Coffee

Sean, Ben & Logan at Ben's favorite coffee shop, Smelly Cat.
In the last few weeks, Sean, our six year old, has expressed that he wishes to live with Ben and their cousins when they get older. According to Sean, he and Ben will share money, and Sean will cook supper (his word, not mine). Then he wondered where Ben would work. After talking about a few options, he decided that Ben could work at a coffee shop, wiping down tables and cleaning the floor.

We smiled at Sean's sweet idea to live with his brother when he gets older. Who knows how the future will play out, but it says a lot about what is in Sean's heart.

These conversations with Sean combined with a recent meeting with a mom with a 22 year old child with special needs really got me thinking. This mother was concerned about how her daughter would spend her days when she graduated in May.

I realized that Sean had a point and thinking about this now, and not later was important. Why couldn't Ben work or volunteer somewhere when he is older? And how much older? Ben could volunteer as a teenager at a community organization. There are places that he could develop his skills, form friendships and also begin a routine for when he is out of school permanently. Ben loves the fire department, libraries, coffee shops and sporting events - how could he serve at these places? What creative ways can we help him be a contributing member of his community? Does a cute smile and warm hug brightening a consumer's day count as a job? I think it does!

Lucky for us, other families have already forged their way in this arena. A family I know with a son with special needs worked at a grocery store and then the police department. At the library, a senior citizen and his case worker put DVDs back onto the shelves. Often I see a mom and adult daughter team working at the local children's museum, cleaning up the rooms throughout the day. A close friend sends her teenage son with Down Syndrome to the family farm to work with the chickens every summer.

There seems to be an openness to help our special children find a niche in the community. More likely, as parents, we need to welcome the idea of our children going out into the world and making their own way. We expect it of our typically developing children, plan for it and would be shamed if we did not let them pursue a future for themselves. It may be a different experience - a little scary, more emotional and time consuming, but it is still possible to let our children with special needs find independence as teens and adults.

About a day after those conversations with Sean, he asked "If you know someone, like a brother or cousin, who work at a coffee shop, can you get your coffee for free?" What appeared to be a careful thought process about Ben's future may have been a thinly veiled ulterior motive. Oh brother!

Comments

Popular posts from this blog

Parenting an Adult Child with Disabilities

  "Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence

He Ain't Heavy, He's My Brother

After my post, Brotherly Love , I received an email from a reader who reminded me of this song. I knew the song, but had never really thought about the words and the meaning behind them. I looked it up and thought others might see the lyrics in a new light.   He Ain't Heavy, He's My Brother The road is long With many a winding turn That leads us to who knows where Who knows when But I'm strong Strong enough to carry him He ain't heavy, he's my brother. So on we go His welfare is of my concern No burden is he to bear We'll get there For I know He would not encumber me If I'm laden at all I'm laden with sadness That everyone's heart Isn't filled with the gladness Of love for one another. It's a long, long road From which there is no return While we're on the way to there Why not share And the load Doesn't weigh me down at all He ain't heavy, he's my brother. He's my brother He ain't h

Kids Who Volunteer

On Saturday, Kidz That Care , a nonprofit organization in Charlotte, visited Ben's Easterseals UCP group home to "Pack the Pantry" with groceries and beautify the front porch with flowers. Ben joined the group outside and watched them plant poinsettias, sweep leaves and wipe down tables.  I wasn't sure how engaged Ben was in the activity but when I tried to take him for a walk, he made it clear he wanted to stay and observe. He hugged the one adult with the group (not the photo above).  When the group was leaving, Kidz That Care asked to take a photo with Ben. I noticed how Liam, one of the teen volunteers, kneeled next to Ben rather than stand behind him. Usually people not comfortable around Ben are hesitant to get close. I was impressed with Liam's willingness to bend down and be at his level. Then Ben leaned in for a hug and held on to Liam for several minutes. Ben's hands were tight around Liam's neck and he kept his head on Liam's shoulder. It w