North Carolina Leadership & Advocacy Program

North Carolina’s Partners in Policymaking© Leadership &

Advocacy Training Initiative funded by

the North Carolina Council on Developmental Disabilities

is pleased to announce the opportunity to apply for the 2015 Class of Partners in Policymaking© (“Partners”). Partners is a nationally-replicated leadership and advocacy training program. This program is designed ONLY FOR self-advocates with developmental disABILITIES and for parents (and caretaker siblings) of school-aged children with developmental disABILITIES residing in the State of North Carolina.

The program teaches how to garner the skills and employ the tools to become, “effective disability policy change agents” for better, more successful outcomes in their own lives and in the lives of others.

The program is for anyone living in North Carolina who has a developmental disABILITY, or is a parent or care-taker sibling of a school-aged child with a developmental disABILITY who wants to experience for themselves, or their child or sibling, higher levels of inclusion, independence, self-determination, productivity and integration in their lives.

Please note that all applications must be postmarked by midnight on January 16, 2015/EST.

Link to Facebook Page

If you want a copy of the application,

send me a message:

vanessainfanzon@gmail.com

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Parenting an Adult Child with Disabilities

"Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence

Parenting an Adult Child with Disabilities: From Group Home Placement to Discharge

Last August, we moved Ben into an alternative family living (AFL) placement, about 90 minutes from our home in Charlotte. It was a three-bedroom house and Ben was given the largest bedroom with its own bathroom. A typical AFL in North Carolina operates like this: a person with disabilities, the client, moves in with another family, couple or an individual. The client lives in the family’s home and the family receives payment in return for housing, feeding and caring for the client. Ben’s AFL was unusual: A couple with extensive caregiving experience wanted to run a three-bed group home but needed to apply for the license through the state. They were willing to take Ben as the first resident in a house, separate from the one they lived in. The plan, according to the couple, was to get approval for the group home within a couple of months. We ordered Ben a double bed, headboard, 54-inch television, new sheets, towels and blankets. Friends helped us move him in....

Ben is thriving in his group home in Charlotte. I wrote about what he's been up to in this story in Southpark Magazine: Givers: All together Happy Holidays! Photo Credit Grant Baldwin Photography

eSpecially Ben

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