*This SSI issue has been going on for some time. It is now resolved. I wrote this in February, but waited to post until resolution was final. There was no line to get into the Social Security Administration office, which was unusual. The security guards, the same ones I have seen each time I have paid a visit, do everything but frisk us. Luckily, my weapons and belt were at home. The government issued walls were gray, seats for 100 people were tucked in tightly. The saying, snug as a bug, came to mind, with bug bolded and underlined. Windows around the perimeter served as some of the meeting space for Social Security workers and their clients. Windows had thick plexiglass strips about every five inches. I imagined it kept someone from jumping through and throttling the staff. When the case manager called our name, we followed through the door into the bowels of SSA. She did not speak, but expected us to follow. She was an older woman, whose demeanor seemed unpleasant. She showed us
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.