Started the Day with a Birthday Donut. Train ride to Steak & Shake. Milkshakes all around. To he** with dairy free , it's my birthday! Perhaps wearing the hat is not one of the favorite things. Sean entertained us with pole dancing. Ended the day swimming with friends and family. If Ben looked a little dazed and confused, this birthday celebration was also day seven of his sleepless week.
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.